• 1 month ago

    Chronic Pain

    I am looking for suggestions or info from anyone on pain. I am 57 yrs old and have degenerative disc disease, collapsed discs, scoliosis (recently developed), Rynards Syndrome, Thyroid issues, osteoporosis & osteoarthritis. I’ve had one back surgery & was just told that another surgery would probably not do much for my pain.
    I’ve been in 3 auto accidents, totaling all 3 vehicles each time. I had to be cut out of 2 of the vehicles with the jaws of life, fracturing my neck in one. None my fault. I know I’m extremely blessed to still be alive. I am on disability and miss working, I loved it. I live alone and do not have much help if any at all.
    I’ve done the steroid injections, cortirising the nerves, physical therapy and pain management pain meds. I weaned myself off of 80 mg OxyContin a day approximately 1 1/2 yrs ago. I’ve also read that continuous steroid injections are just as bad. I’ve applied to be in clinical research in hopes of finding other ways to function daily. I am in some type of pain 24/7 and unless you’ve experienced that much pain, nobody will understand.
    I’ve tried to keep up with a couple different meds that are in research trials that are not addictive, no possible chance of overdose and alleviate pain. It’s been 2-3 yrs and still nothing. I’ve tried meditation but it’s extremely hard to quit my mind.
    If anyone can offer information that might help, I’d appreciate it.
    rené

Responses

  • 1 month ago

    RE: Chronic Pain

    Have you tried medical marijuana?
  • 1 month ago

    RE: Chronic Pain

    I have used CBD oil for my osteoarthritis in my knees and I'm 58. It is a great help. Takes it from an 8 to about a 2 each day. It doesn't get you high. Hope you find something that works for you.
  • 30 days ago

    RE: Chronic Pain

    Good for you in getting off opioids. Current research indicates that long term use of opioids will actually increase chronic pain for most individuals.

    Accept the fact that you will likely have pain for the rest of your life but with the proper support, training, and the willingness to try techniques and procedures that are non invasive, performed by licensed health professionals, and have little to no side effects you will likely be able to successfully manage it.

    If you live in the SF Bay Area I would suggest getting a referral to the Stanford Pain Management Clinic. The are one if not the best pain management resources in the Country. They are chronic pain specialists. If not find a pain management clinic that near you, preferably associated with a university that is motivated by helping patients, not profits.

    Find & attend a chronic pain support group. Go to www.theacpa.org to find one.

    If anyone promises freedom or a pain free life from your chronic pain, run away from them as fast as you can . They are lying and after your wallet.

    Ignore any who offers bizarre treatments such as weird diets, bowel cleansing, exotic herbs, magical medications, etc. They never work, are often expensive, and can damage your health.

    Hope this helps
  • 30 days ago

    RE: Chronic Pain

    I also have a number of back and knee issues which cause persistent pain. Every 6 to 8 weeks I get muscle relaxer shots in my back which are not addictive. My three suggestions are:
    1) Do you need to lose weight? If so, that needs to be a priority. Weight causes increased pressure on joints and your back which creates more pain. When I lost just 20 lbs I experienced less severe pain. It’s not gone but it is more tolerable.
    2) I stretch every morning. They are simple stretches that I got from my doctor. If my back is hurting during the day I will try to do some stretches. Since I work that can be difficult since we have no place to really go but I’ll sneak into an office and try to get a couple done.
    2) When my back is really painful, I get massages. Many insurance companies will cover X number of massages a year. I have budgeted at least one massage a month.
    You have probably heard these but you didn’t mention them. Good luck in finding relief.
  • 30 days ago

    RE: Chronic Pain

    I just spent 1/2 a year with the Abbott Burst neuron stimulator. It helped me with my pain.
  • 30 days ago

    RE: Chronic Pain

    I have many of the conditions you mention. Due to low bone density I am currently not a candidate for back surgery. This along with severe RA, osteo and rheumatoid arthritis, scoliosis and osteopenia give me pain every day, every hour. The only thing that I have found that truly helps is hydrocodone. With all of the hype about opiods, I feel like a criminal. Medical rules, insurance rules, etc., make it a real challenge to even obtain this drug. But it is my only suggestion for you. Swimming helps for the time I am in the pool but does not give continued relief.
  • 30 days ago

    RE: Chronic Pain

    My wife has had chronic pain for many years due to multiple knee surgeries. She completed a dissertation on the subject during a counselling course. She cycles between OxyContin and durogesic patches every couple of years as the tolerance level increases. She uses morphine very occasionally for serious breakthrough pain. You need to understand the difference between physical dependence and psychological addiction to these drugs. Rarely does a cronic pain sufferer end up with addiction, although dependence is common and will result in withdrawal symptoms when coming off one of these drugs. But so what, this should be done under medical supervision and you will be fine. It seems legislators, the medical profession and the media have gone quite hysterical over opioids in America lately. It is far more civilised elsewhere in the world where these very useful drugs are used routinely without drama.
  • 30 days ago

    RE: Chronic Pain

    Hi Rene i to was in pain 24/7but came across a great pain relife that works with hour body's pain its called comra palm go on Google or you tube its expensive but it realy does stop wot ever pain.you are in hope this helps and if u feel low and need somone just to lister you can find me under name holly Ivey on Facebook u can friend me
      • 29 days ago
        Hi Rene ,I have most of the complaints I.e spinal stenosis ect.
        I have taken where possible the natural route tumeric,ginger,garlic and cbd along with small amounts of diazepam 2mgs x4times a day and amitriptyline an hour before bed.So far so good the antin inflammatories are keeping me going.Sorry for the spelling and large letters but old person and not computer savvy.
        Bob
      • 23 days ago
        I have to agree with Bob!! I’m on pain medicine and Ibuprofen 800mg. I also take 450mg. Of Turneric, every 6 to 8hrs. And it helps, big time! I think you will be shocked, as I still am. It is a massive antinflammatory and really does work. Most people don’t even k ow there body is inflamed inside. Please don’t feel bad if just herbs and baths, don’t help. There pain is obviously not bad at all and no one has the right to judge you and your pain. It is true that u will tap out on a pain killer and have to switch them around. There is a big difference from being dependent, which is fine, when we are in the pain we are in, to an addict! Addicts use needles and slam drugs, Snort them or smoke them. If your taking it the way you are supposed to, don’t let someone else make you feel bad for it.
  • 29 days ago

    RE: Chronic Pain

    I am 59 and have had chronic pain since before the age of 30! I’m from western Massachusetts. Diagnosed with something very rare and painful. Anyway at this time I won’t get into it, but will let you know that a pain clinic is probably your best option. Make sure it’s one to offer things besides medication! I have had a spinal chord stimulator implanted since 1997? Just recently got a completely new system! It was my 17th surgery. The stimulator takes some getting used to, but does help with pain. I am still having to take some meds, but nothing like I used to! Good luck and I can empathize. Going through all you have is not just physical it affects you mentally too! And unless you’re in it, you can’t understand
  • 29 days ago

    RE: Chronic Pain

    For any kind of arthritis all you need is to eat one small cup of jello do sugar free Walmart has it all the time!
    For other pains use Naproxen 500 mg use 2 at a time prescription or over the counter then at the same time use 2 Tylenol Arthritis which is 650 mg each!
    The pills you are taking are very addictive these are not!
    Last take a nice hot bath with epsom salts which has Magnesium I take my bath before bed because Magnesium helps me sleep!
    I hope all this will help remember Magnesium, Naproxen, Tylenol Arthritis, epsom salts and jello cups all meds and jello kills the inflammation in your body and inflammation is what is causing all your pain!
    I hope this helps you like it helps me!
  • 24 days ago

    RE: Chronic Pain

    Hi Rene I use medical marijuana for pain management. It is a 24/7 cycle and many of us can relate but have a hard time explaining like you mentioned in your post. I recommend researching King Harvest Wellness to give you a better understanding of what protocol will better suit you. Cannabis is a universal medicine that covers a wide range of symptoms however, one of the biggest discussions is always pain management. Depending on your tolerance, I think you will find better results using medical marijuana. Since you are starting to taper off your current medication now would be the best time to switch. This isn't a miracle plant or drug. Our bodies naturally heal themselves and over time this process starts to slow down because of stress, inflammation, and trauma. I want to share this video regarding the opiate crisis.
  • 22 days ago

    RE: Chronic Pain

    Hello rené,

    I sympathize with you. I too live in chronic pain and haven't known what normal pain is like since I was 28. I’m now 43. Even before then I dealt with a lot of back and neck pain. I haven’t dealt with automobile accidents as you have. I don’t have any clear answer as to why all of my issues developed other than a wreck on a mini bike that tore up one knee. Other than that, I have arthritis in multiple areas, problems with both knees, nerve damage, scoliosis, avascular necrosis, spondylosis, and the list goes on. I also have to deal with an impaired immune system that lands me sick so often and memory problems that are so incredibly surprising when I discover what it is that I have forgotten. I have all the symptoms of Multiple Sclerosis as well as the “bands” of damage to the myelin in my brain, but no formal diagnosis of MS. I understand quite well what you mean about others not understanding what pain is like when you deal with some type of it 24/7.

    I don’t understand why you weaned yourself off of pain meds though. And honestly, 80mg of oxycodone per day is not much at all, especially for as much pain as you’ve described. One of the posters on here stated something about a difference between physical dependance and addiction, and they are so very right. For a slightly exaggerated explanation: Addiction is where you’d sell your baby for drugs. Physical dependance is simply your body needing it because you’ve taken it every day for long enough to become dependent. You have to put all of the worry about that out of your mind. The media has done a fine job to insure we all know about this supposed opioid epidemic. I won’t dive into my own personal view on that much, other than saying that the statistics are incredibly skewed that make a convincing story, and I don’t believe it—at least not the way it’s portrayed by the media. You are not a monster, or the bad guy, because you take pain meds and you shouldn’t feel as such. You have to remember that they are not you, and what you stated about people not understanding pain 24/7 applies here just as much. Other people’s opinions shouldn’t affect you dealing with your own pain. A pain doctor I read about put it quite well when talking about treating chronic pain with opiate medications. He stated that for once there’s a positive side effect, amidst the many negative ones often sited with medications, being the positive mood and happy nature caused by opiates for some patients. It may take a while to find a good pain doctor. I’ve seen many and have found some real pieces of garbage along the way. Just because they’re a doctor doesn’t mean they know the answers. I’ve found many that have been wrong.

    Amidst the hysteria, remember that pain meds do come from a natural source and they have been used for thousands of years. You are correct, steroid injections can and do cause problems. Usually, now, patients are only given pain meds for chronic pain after they’ve gone through all of the failed intervention pain treatments. Steroid injections caused my avascular necrosis. Surgery can cause a lot of problems as well. I had foot surgery years ago that has now acted up a decade later into pain that wakes me from sleep. I’ve gone through multiple treatments of radio frequency ablation and it has contributed to nerve damage, sleeping problems, and more chronic pain. My pain doctor is now taking about a pain pump and I do not want it. All of this talk about a supposed opioid epidemic has lead to a supposed rule of no more than 100mg of morphine or equivalent per day has now lead to my doctor wanting to implant a pain pump. The CDC has no business doing what they’re doing. This supposed epidemic should not threaten pain doctors and impact the lives of pain patients in negative ways. There is no reason why I should have to consider a pain pump. I am quite capable of taking oral medication and it should not be posed with surgery because of hysteria and pure bs from our government.

    If you’re looking for other ways to deal with pain, I can say that changing your diet can help. Red meat really isn’t good for you. In a natural setting, red meat would only be consumed on a seasonal basis. I made the rule that if I cannot pronounce it, I will not eat it and most things really shouldn’t have much more than 5 ingredients (depending upon what it is, obviously). Cutting out all of the preservatives, additives and chemicals from my diet and my lifestyle in general (including soap, toothpaste, laundry detergent, any anything else I could think of) helped me considerably about 9 years ago. My allergies disappeared, pain was improved along with other aspects of my life. You can read about different herbs online, but I’ve had luck with Turmeric, Ginger Root, Motherwort, and a few others. At one time, I swore by a few different herbs. There are online forums for just about anything you’re going through. I dealt with a divorce 8 years ago and at that time a forum on FaceBook was a Godsend. I’m sure you know that living alone can be quite lonely. Having a pet can provide some company as well as some other structure to life. If considering one, be sure to get one that can fit your lifestyle. For example, a big dog like a German Shepard requires a lot of exercise. If you’re not able to provide such a thing, a large dog as such probably wouldn’t be a good fit.

    Everyone is different and you’re going to have to find something that works for you. Ultimately, you’ll have to accept that nothing will ever take away all of your pain. But, that doesn’t mean you should settle either. If you find the right combination of lifestyle changes, friends, food, doctor, medication, and even schedule, many people with severe ailments can lead productive and happy lives. Even “productive and happy” is different for everyone and don’t allow some standard you’ve read about or anyone else’s option to affect your own pursuit for happiness.

    All the best of luck to you,