• over 1 year ago

    Osteoporosis

    I have had osteoporosis for about 10 years was diagnosed after I fractured my spine from trying to keep my mother in law from falling. I lived a healthy lifestyle or at least I thought. However I did learn I was at a greater risk because I had a hysterectomy at the age of 27 due to bleeding problems with my period and went through menopause early. I couldn't take hormones due to risk of breast cancer. But I was at a greater risk because my mom broke both her hips which is something my rheumatologist used to get my risk factor, going through menopause early, plus the fact that I had fractured spine. If you decide to take meds be careful taking fosamax because if on it for more than 5 years can cause spontaneous fractured of the femoral bone. I am currently taking forte but can only take for 2 years daily injections that help rebuild bone. Good luck no matter what you are told I'm a disabled nurse and have been told there is no cure. Just live as healthy as possible but you don't build bone after the age of 35 unfortunately. Make sure that even after starting meds have DEXA SCAN repeated every 3 years as possible per my doctor recommend.

Responses

  • over 1 year ago

    RE: Osteoporosis

    Yes, unfortunately years ago we didn't have the info on osteoporosis that we now have. So much could've been done to prevent it. Do you know it is now classified as a pediatric illness that manifests later in life? That's because the age at which we reach our peak bone mass has been lowered to 21! due to changes in lifestyles of the young. Less dairy, smoking, hardly any PE classes anymore and staying indoors doing video games instead of playing outside.

    In reference to your concern about spontaneous femoral fractures due to bisphosphonate use - that study is from a group in New Zealand who's made it their life mission to undercut the use of medications that can reduce your risk of fracture. It was not a controlled study and is not accepted as bona fide by healthcare professionals. It does make the rounds on the internet, however.

    The 5 year use of bisphosphonates is also something that has been arbitrarily selected due to public concern arising from internet stories/fake news :) These meds stay in your system 10 years. Studies are going on now as to how long you can safely take them. They are still relatively new and because of the 10 year half life, it takes a while for studies to be complete.

    What our medical director recommends if there is concern, is IF your bone density test results are stable after 5 years - that means staying the same or no significant decrease (significant being defined as the LSC - lowest significant change - based on the machine's precision study results) try going off.

    After 2 years, have another DXA. Insurances pay for them every 2 years. If your results are still stable, continue what you're doing. However, if there's a significant decrease (again based on the LSC, NOT the T-score) go back on the medication and don't even consider going off again. Your risk of having an osteoporotic fracture is much higher than any possible side effects of a medication.

    Also remember to take in 1200 mg of calcium a day in diet and supplements or any medication won't work effectively. 600 mg at lunch and 600 at supper.
      • 10 months ago
        I have been doing extensive reading on osteoporosis, as well as speaking with my friends. Here is what I have found:
        The two friends taking bisphosphonates have had serious side effects. One, had trouble swallowing. It kept her up all night. She subsequently started drooling. This was after several months of taking Actonel. The doctor took her off of it. The other, developed jaw problems. Both have discontinued these meds.

        After reading about the fact that this is a normal part of aging...except in countries who do not seem to make animal protein a part of their diet...many doctors recommend walking, taking tums for calcium, getting out in the sun and take vitamin D and eating plenty of beans, seeds, dark leafy vegetables and staying away from animal protein.

        I am in the insurance field and let me tell you, the people I see who take medications for one thing after another look the sickest and can barely move. The people who tend to be holistic about their bodies and the ails that develop look healthy and seem vigorous.
      • 9 months ago
        Carolynem, I wish you health and strong bones. I hope your genetic makeup is such that your bones will support you for life as you're taking a lot of risks. Osteoporosis is not a normal part of aging,nor are all meds bad for you. They save lives. Did you know from your reading that 1 out of 2 women over the age of 50 will have a nonviolent fracture (which gives them an automatic diagnosis of osteoporosis), that half of those who fracture a hip will die within a year of that fracture? Something to think about. Also after age 50, our bodies don't make enough Vit D from the sunlight unless you live near the equator. You need a supplement. Tums are good for calcium. The body will only absorb about 500-600 mg. Anything more is excreted in the urine. You need 1200 mg a day.

        I hope you don't decide later on that you should've taken a medication and were afraid to because of conversations with friends or unverified news articles. Bone that is lost is not recovered. By age 30, you have all the bone you're going to have. You need to preserve it. Medications, when needed, do that.