• 11 months ago

    Keeping your marriage together through the MeSs

    Hello everyone, my name is Stephanie and I have been diagnosed with MS for 22 years. My husband and I just celebrated our 26 year anniversary. My husband lately is displaying in different ways that he may be reaching a breaking point in dealing with the MS and the limitations it is putting in his life as far as moving forward. I am trying to communicate understanding, but I don't want to lose him. Feeling stuck and don't know how to help him. He won't go to support groups and is not sure he wants to try marriage counseling. Any thoughts, support or suggestions would be much appreciated!!

Responses

  • 11 months ago

    RE: Keeping your marriage together through the MeSs

    sending you a much needed hug... don't know what to say... other than work on you and your happiness, do yoga, deep breathing, meditation...be the best you you can be stress is not your friend...
    reach out to friends not to commiserate but to find peace thru positive happy filled conversations..know that you are loved
      • 11 months ago
        Thank you so much for the kind words! We are definitely both doing all of those things and moving through this with love. Appreciate you saying you have no answers because there aren't any other than staying strong and calm through it, another beautifully tragic phase of getting closer and loving each other better, more honestly and stronger. MS for me has always been a journey of self discovery and for that part of it ONLY I am thankful. Some people don't ever have to tap in so deeply and examine the layers and capabilities they have and own it. Sending you a big ol' hug back and thank you so much
  • 11 months ago

    RE: Keeping your marriage together through the MeSs

    I am so sorry you are at this difficult point in your marriage and can only imagine how stressful this is for each of you. I often encourage my husband (we have been married 25 this year) to keep up healthy relationships with friends and some of his own activites so he is not only doing things for me, our house or what I am unable to manage due to MS.

    He loves to golf and has friends in the area he tries to get together with every few weeks. I also enjoy time alone, going to bed early or catching up with some of my friends or emailing family for myself . Knowing he is 'free' of the obligations helping with other things I either do not want to do or am no longer able to do helps us to keep growing in our marriage and share new things together.

    I think it is critical for all of us either with MS or living with someone with MS to continue to identify with time and experiences without the disease. It is certainly a part of our lives but not our whole life.
      • 11 months ago
        Thank you so much for the encouragement! We are both doing our best to do whatever ot takes to get through this, seeing little glimmers of hope which is helping for now.