• 6 months ago

    MS

    How long did it take to diagnose MS? I have been going to doctors for 2 years now. I have another MRI tomorrow. I need to find out. Its driving me crazy!

Responses

  • 6 months ago

    RE: MS

    It shouldn't take that long I knew the next day of my mri there are other tests that have to be done to rule out other mimicking diseases hope you get good news
  • 5 months ago

    RE: MS

    Get a spinal tap done
  • 5 months ago

    RE: MS

    My initial symptoms appeared in 1981, did not get a firm diagnosis until late 1990's as I did not have clear symptoms or progression. Even in the past few years, the neurologist I saw after my neurologist of 20 years retired questioned the diagnosis. There are many things to be ruled out, it is not an easy diagnosis, there is not a clear and definitive test for MS. Even with the diagnosis, your course of illness will vary and be unpredictable.
      • 5 months ago
        This is the same way with me. My first symptom was in 2008 Vertigo I still don't have a 100% Dx in 2018.
  • 5 months ago

    RE: MS

    Took 13 years from first symptoms to a diagnosis. First symptoms: 1982, diagnosis: 1996
  • 5 months ago

    RE: MS

    Hello Scotchie,
    MS it is difficult to diagnose. It's scary not knowing but feeling the symptoms. It should not take long once you have a history of symptoms and get an MRI done. I personally would look into the dangers of a spinal tap, and the success of diagnosing MS, before taking the spinal tap rout. My research made me believe that it was dangerous and not definitive (around 50%, just flip a coin). Remember there is no one test that can say for sure that a person has MS. Also if you find out that you do have MS, every person is affected differently, so my belief is, that one treatment is not good for everyone and each person should think of themselves and determine the best treatment for themselves. Best of luck to you and your future
      • 4 months ago
        It took 13 years for me to get a diagnosis. I did go the spinal tap way at the beginning (awful experience) and it did not help with a diagnosis.
      • 4 months ago
        Yea I'm not sure why they even offer spinal taps for MS. I guess it's one more thing to charge for
  • 5 months ago

    RE: MS

    Ive been diagnosed by my internist, he's wanting me diagnosed by a neurologist. Internist diagnosed me with progressive MS in Dec 2017. It all started Oct 2014 and I just saw a new neurologist that specializes in MS this week. It's a Shame it takes this long! I just turned 45 and have been using a walker for 2 yrs now! I have to travel at least 2 hrs to see a neurologist worth anything (and I can't drive anymore)
    I Surely hope you have much better luck than me!
  • 5 months ago

    RE: MS

    It has taken me 10yrs!
  • 5 months ago

    RE: MS

    It took me about two years. And now I'm told I probably don't have MS because I have not go any new symptoms for a few years. And a doctor from Cleveland Clinic said some of my white matter is not MS. So I have no clue now.
      • 5 months ago
        I had sooooo many tests, MRIs and Lumbar puncture but they still are not there with regards to prescribing medication and want to do more blood tests and another MRI with dye. It is completely complicated and does get you down as you just want a correct diagnosis with a treatment plan and then get on with life. I now just get on with life and try to jump the hurdles as I approach them. Keep smiling.
      • 5 months ago
        Great advice :)
      • 5 months ago
        Yes it is frustrating when you get all those test done and still not 100%. I now have to get another lumbar puncture in the future. Hang in there every one who's dealing with this "not knowing" disease. lol
      • 5 months ago
        Hello Anonymous,
        I just wanted to say that I am sorry for the back and forth about possible MS. I also wanted to mention that I go four or five years, or even longer between noticeable flareups. I am only bringing this up because I know how I would feel if my doctor told me never-mind you do not have MS. I do not take the medication, but if I did that would make that news even harder to deal with. Maybe another doctor's opinion would be an idea
  • 5 months ago

    RE: MS

    I had my first event in 1988, was symptom free until 2001 when I had optic neuritis in my right eye, and finally - officially - diagnosed in August 2006. The delay in identifying my MS may have been the timing of the events, as well as our having to relocate to multiple states with our work. Another element may have been that my 2001 event, even with my MRI showing MS lesions, was ignored by the specialist. It was a relief to finally locate a doctor that listened to my symptoms and was able to put all of the "hints" together into my diagnosis in 2006. The key is finding a doctor that listens and is willing to do the tests to confirm the preliminary diagnosis.
      • 5 months ago
        After having a flare up for the second time (still undiagnosed at this point) where I lost my mobility I went to the GP, yet again as this is over the course of 8 yrs, and I told him and he asked me if I was exaggerating which I stated ‘No!’ and then I said to the GP I was initially thinking that my symptoms were because of Fibromyalgia but then I asked him ‘Do you think I have MS’ at which point he stated No but let’s get some MRIs done and le et voilà!
      • 5 months ago
        I have the optic neuritis also.. I keep putting off going to the neuro optimoligist but my headaches and eyesight is getting worse by the min. Taking round the clock meds like asprin and Tylenol on top of prescribed meds for headache.
  • 5 months ago

    RE: MS

    I was Dxd in 3 weeks at Mayo Clinic, Tyler Texas in 1978. The spinal tap was the final test and finally proved MS with the high protein level.
      • 5 months ago
        They had a Hard time doing spinal on me but after a Lot of pain they got it and said it was negative but it didn't matter! Said it didn't have to be positive to have MS. I was upset about that because it was so hard on me. They said my muscles we're so contracted in my back tmit was hard to get to. (Just wondered why they did it if it didn't matter)
  • 4 months ago

    RE: MS

    Need name of best doctor in or nearest to TN
      • 4 months ago
        Use the online physician searches, paying attention to patient ratings of the physician and their office staff. The "best" doctor is the one that will listen to you, talk with you, collaborate with you on your diagnosis and treatment, and make recommendations. With MS, you are entering into a long-term relationship with your doctor, choose as carefully as you would any other long-term relationship. I have had 5 neurologists over 36 years. I have fired 3 of them, the best one retired. Carefully reviewed background on the last one, she was skilled but would not listen, review records from my best neurologist, and her office staff treated patients like cattle.
      • 4 months ago
        You're correct!
  • 4 months ago

    RE: MS

    Have you had an eye test?? or spinal tap?? or hooked up to wires to sense the impulses from the brain to other parts of your body. I have friends who had MRI's only and they were told diabetes and not MS. You need the other tests. Lesions can show up in the brain for other conditions. I get mri's to only see if new lesions have shown up!! keep your stress down is going to be your biggest challenge
  • 4 months ago

    RE: MS

    I guess my MS journey wasn’t what you’d call typical. First indication was a spot inadvertently found on brain CT scan for different reason but I didn’t have any symptoms at the time. That was in September 2009, the first time I experienced symptoms which were stroke-like ones and totally went away after two weeks was at end of that month. Then in April 2010, an attack of transverse Myelitis lasting a week and later reclassified as MS relapse before diagnosis hit and I’ve never been the same. I had brain & cervical spine MRIs and finally in June 2010 a lumbar puncture which revealed 13 Oligoclonal bands in CSF fluid and a definitive RRMS diagnosis. If you’re not comfortable with what a doctor tells you, then it’s time to find a different one, be it a PCP or neurologist or any other healthcare provider.