Filter by
  • 4 days ago

    Adherence to medication

    Help us pilot a cool platform on adherence to medication. Buddy&Soul is a digital platform for personal development – a way of achieving all those great things you’ve always wanted for yourself. We offer courses where we help members deal with willpower, motivation, illness, relationships, etc. We’re looking to pilot our content and get feedback from savvy users – if you’re interested in improving your adherence habits, we can give you free access to one of our courses “adherence to medication....
  • Is this possibly not MS-related?

    I was diagnosed with carpal tunnel syndrome in 2015. Then, I was diagnosed with RRMS the same year. I was told that I no longer have CTS anymore, and my orthopedic specialist thinks it's MS causing the issue. However, my neurologist isn't sure that It's MS-related. I have been on Tecfidera since June 2016. I received a steroid shot in my hand, and it only made it worse. Many medications have not helped either. This is what my hand feels like: As if I sat on my hand. Extreme numbness that....
  • 6 days ago

    Girdling Multiple Sclerosis Pain ("MS Hug")

    I was wondering if anyone else here with MS has experienced the so-called "MS Hug," a band of pain or pressure around the chest or midsection. It's happened to me multiple times - ranging from feeling like a literal hug to being excruciatingly painful - but almost always only a night, sometimes while I'm fully asleep. Has this happened to anyone else, or is this a unique problem?
  • 6 days ago

    What's going on?

    I am fairly new to Multiple Sclerosis. I believe my symptoms are being handled pretty well by my meds. I have a horrible numb/ dead pad feel to my feet that is constant. It manages to turn into a hot pins and needles feeling when I move my feet or walk on them. Is this common? My doctor mentioned spinal neuropathy and then let it go! I am currently on 300mg of Gabapentin 3 times a day which helps greatly on my muscle spasms, but NELCH on the feet. Ever seen anything like this?
  • Pain and MS

    One of the common myths and misconceptions about MS is that it is a painless condition. Unfortunately in the past many people's pain was dismissed. As a MS clinician and patient I can tell you with absolute certainty that MS pain is real, and there are ways to manage it! Talk to your neurologist if you have nerve pain, trigeminal neuralgia, muscle spasticity, the MS "hug", headaches, or any other symptom that is interfering with you daily life. For more information you can head to the....
  • 10 days ago

    Scared I may have MS

    Good evening. I am little scared and could use your thoughts. A little over three weeks ago, my right leg went numb below the knee and I started to get pins and needles in the feet and cramps in the calf. I also had a dull pain behind my left eye and very slight shaking (kind of like my whole body was on vibrate but barely noticeable to me). The pins and needles, numbness and cramps started to migrate to the left feet and calves over the next two days. The afternoon I had a really sharp pain on the....
  • 13 days ago

    Chronic headache

    Im 24, I have Chiari Malformation but this seems to be unrelated. I had an MRI but have not had one since this issue discussed has started. My dad has MS. 4 weeks ago, I thought I had a migraine. I took the prescribed Cambia and it went away. Next day, it was back and worse. Took the cambia again but it didn't help, took Advil,daily nortriptiline, muscle relaxers, more cambia. Called my neurologist after 3 days and they suggested going to the ER to get an infusion. It helped, until I stood up....
  • Survey Shows Many People with MS are Open to Using Medical Marijuana

    According to a GeneFo online survey 95% of people with MS are open to Marijuana treatment, and 73% have already tried it. Medical marijuana is not well studied and not legal in every state, making it a controversial topic. You can read the full article here: Do you think people with MS should be allowed to use medical marijuana for pain and spasticity? Share your thoughts and....
  • 18 days ago

    Since 2010

    I get depressed, feel so lonely. It's so hard for people to understand the pain my legs cause, my memory loss, my screwy cognition now, my fatigue.... my feelings go up and down like a lasagna noodle! I try to stay active but I'm only good in the mornings and very early afternoons. Love to read everything I can from others with MS and topics on MS.
  • 25 years now feel lost

    Diagnosed 24 years ago same year I graduated from college, and 2.5 years after the birth of my 4th child. My diagnosis came after 5 years of bizarre symptoms, in which my PCP had written me off as crazy. That is a literal term, he once had me committed for 6 days for depression? The psychiatrist said, "I think you need a second opinion". However my husband and I being trusting still waiting it out for 4 more months before diagnosis. However when diagnosis came I was so thankful that I was....