Filter by
  • 2 months ago

    Health insurance for rehab

    Hi! It's hard for me to ask someone familiar about this. So I require outside help... I'm looking for drug rehab for my sister. She doesn't have any insurance because she didn't work for a long time. I found info about rehabs where you can have treatment without insurance ( https://addictionresource.com/drug-rehab/no-insurance ) . Anybody heard about such centers before? What kind of documents do they need? And what living conditions do they propose?
  • 3 months ago

    A page that keeps track of new treatment options for lupus

    Anyone else see this thread on reddit? Feb 11, 2019 Web page I made that tracks SLE / Lupus treatment-related news, research, clinical trials, and updates" https://www.reddit.com/r/lupus/comments/apmrdm/web_page_i_made_that_tracks_sle_lupus/ Good for seeing what's around the corner, in my opinion. Lupus Treatment Report https://www.lupustreatmentreport.com Where do you get your treatment updates and those of you who keep up... how do you keep up? Any other good sources/links? Thanks
  • 4 months ago

    Lupus Pain

    The past few days I've had so much pain from my flare that all I can think about is a CURE. Anyone have info on the best and latest?
  • 9 months ago

    Looking for health insurance for lupus

    Hi, I am moving to US and wondering if I can buy health insurance overthere to cover all of the medical cost. If yes, which insurance would you recommend? How much would it cost per month? And will it cover everything like doctor visit, prescriptions, blood tests,..? I am 39 years old and have Lupus for 1 year. Any suggestions would be much appreciated!
  • 10 months ago

    Weird symptoms

    Here it goes: I'm a 24 female with historic of chorionic tonsillitis but had my tonsils removed at age 17. On April I started having heart palpitations randomly so I went to the ER, general doctor there asked for an ECG which come back normal so he prescribed me Xanax 0,5mg/ once a day for 5 days, after 10 days the palpitations stoped. Couple of weeks later they come back this time I also got Ill with zebra I think was a bad cold, I had fever of 38, headaches and mucus. I noticed it took me a....
  • 10 months ago

    Chest pain moving

    Hello, I am 36 and I have SLE, Sjogren's and Antiphospholipid syndrome. This spring after a few hours spent in cold weather, I had fever, a lot of night sweating and lung pain, trouble breathing. CT showed a pleurisy with very little liquid that needed no drainage. They said it must be from Lupus. They gave me paracetamol (acetaminophen) told me to rest and sent me home. Since then the fever went away but the breathing problems and pain are still present. I made a new RX and one doctor said it....
  • over 1 year ago

    Vision problems from autoimmune disorder?

    I have been dealing with autoimmune symptoms for quite some time that are widespread. I had tests done last year with ANA of >=1:640 and I was told they would monitor possible lupus symptoms. Anyway, I have started getting weird cloudy blurry vision randomly, especially after eyes are exposed to sunlight without sunglasses. A couple of times, my vision actually went black from the peripheral inward and then vision came back. Only lasted a couple of seconds. Has anyone heard of this before?
  • over 1 year ago

    Lupus? RA? Sjogren’s? Do I need a second opinion?

    I just met with my Rheumy and he offered no diagnosis and no path forward and I am both shocked and frustrated. For the past 3 years I have been dealing with joint pains (fingers, hands, wrists, hips, knees, ankles, and elbows). Every morning I wake up feeling like I was hit by a bus. After about an hour or so, I am able to move around and my joints feel bruised. It is symmetrical. For example, both left and right pointer fingers hurt worse than all other fingers throughout the day. I have clear....
  • over 1 year ago

    Feel like dying slowly

    I've been tested ANA positive since 2013. Yet not a single doctor (seen 3) since then does anything about it nor cares... ANA positive? Ok great, bye! My condition has deteriorated greatly! Now I get unexplained attacks that we almost have to go to ER (the only thing that's stopping us is the ER bill). My first time I tested ANA positive : 1:320. No treatment was given. Now I've tested ANA positive (since 2013 - 2017 always ANA positive) 1:160. My current doctor told me : "No rheumatologist....
  • over 1 year ago

    Systemic Lupus Erythematosus - Possible breakthrough drug Lupuzor

    Finally there could be hope for millions of sufferers of Systemic Lupus Erythematosus. Today UK company ImmuPharma announced the last patient had received their last dose in its Phase 3 trial of SLE drug Lupuzor (also known as IPP-201101 or Rigerimod) with the trial due to end in January 2018 and readout shortly afterwards. Results so far have been impressive, with the Phase 2b trial indicating Lupuzor could be more efficaceous, faster acting and lack the side effects of GSK's Benlysta (Benlimumab....