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  • 1 month ago

    Could I have Lupus?

    Hello, I am a 26 year old male living with a variety of ailments yet to be treated effectively. After extensive research online, I have several reasons to believe that I am one of the few male suspects with lupus. At age 8, I began losing hair in splotches along the back of my head which would soon be diagnosed as alopecia areata. Shortly after, strange reoccurring rashes began forming along my knees and random places around my arms and neck. These rashes were diagnosed as both a dermatitis and eczema....
  • 2 months ago

    Could this have to do with autoimmune?

    Reaching out to anyone with autoimmune kiddos out there. My 14 y.o. daughter has had some markers for autoimmune show up in her bloodwork twice in the past year and is just being monitored periodically by our rheumy at this point. ( I am diagnosed with lupus). She had a bizarre episode Wednesday night that took us to the ER and was admitted but they didn't find anything. She was cheering at football game Wednesday, just fine one minute, then suddenly was in intense abdominal pain, in the center....
  • 2 months ago

    ANA positive with Centromere pattern

    After my ana got positive doctor performed the below. All my other tests are normal Dsdna negative c3 c4 normal . Doctor started hcq as the treatment due to the ATT treatment is still onging.( he started off anti tb drugs for the Puo with skin test positivity) Do I have lupus or crest.
  • 2 months ago

    What You Should Ask Your Doctor About Lupus

    Have you just been diagnosed with lupus? We know that this can be a confusing and stressful time, so we’ve put together a list of 10 questions that you should ask your doctor about lupus: For those who have been living with lupus for some time now, is there anything you’d add to this list? What do you wish you would have asked your doctor at that first appointment post-diagnosis?
  • 2 months ago

    Do I have Lupus?

    Im 18 and I had blood work down in 2014 for joint pain and the doctor said it was a false positive and tested me again and never heard about it again. I switches doctors and she told me I tested positive 2 time in 2014 for my ANA test. My "Value" was 1:80 both time but my WBC was normal and my Neutrophils were always up and down. A couple time lowr then average. My new doctor made me get more blood work and this time I tested positive for ANA with a 1:160 and my WBC is 3.4 which it says....
  • 2 months ago

    Swollen Lymph Nodes

    I'm 53yo, with Lupus and just had my infusion last Friday. Sunday, I noticed a lump below my right ear, the size of a pea that was tender to the touch. Today, the lump grew the size of a small pebble, and still tender to the touch and it hurts quite a bit when I raise my head. I recently had been nursing a head cold and just been getting over it. I never had experienced a swollen lymph node before. Can you tell me what this is all about and why this happens? Should I monitor the growth? I don't....

  • 2 months ago

    sepsis pathogens

    I am not sure exactly how this happens or if there are certain circumstances in which it does not apply .. so i hope this makes sense! I have a cousin who has Systemic Lupus Erythematosus, Hemolytic Anemia, Pernicious Anemia, Iron Deficiency Anemia, RA, and a lot of other things that go along with that. She is not in remission. her immune system is weak. her wbc count is low. Her mom is currently in the hospital after going into septic shock due to a colon perforation. I know sepsis ITSELF ISN'T....
  • 3 months ago

    Drug-induced lupus

    Has anyone ever been diagnosed with DIL (drug-induced lupus)? A few years ago, I began having lupus like symptoms that caused a lot of dysfunction in my life for over a year, and I had a positive ANA test. I was referred to a rhumetoid specialist but he only thought it was something other than lupus and yet never gave me any other diagnosis after many many many tests, referrals, etc. I have had a healthy year now since then but feel at times as if I could be experiencing those symptoms again. I was....
  • 4 months ago

    Sun allergy maybe?

    I'm not quite sure what's going on with me. I'm a teenager- I was diagnosed with mono at the beginning of January. It's now July, and all my symptoms had gone away. I started working as a lifeguard and swim instructor this summer so I spend 4 or 5 + hours in the sun almost everyday. I've never had any reaction to the sun before, except I've never spent this much time outside before. I've been getting this red rash all the way down the inside/tops of my arms and legs. It's....
  • 6 months ago

    How Do You Manage Your Lupus?

    Whether you’re an adult dealing with your own diagnosis or the parent of a child with lupus, you have challenges to face every day. Throughout Lupus Awareness Month we’ve talked about how lupus is diagnosed, the symptoms to look for, what questions you should ask your doctor, and what treatments may help you manage your symptoms. Today we’re taking a look at tips to help you live well with and manage those everyday challenges that come with having lupus. So, take a look at these articles that cover....