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  • 1 month ago

    Waiting on Rheumatologist...

    What do I do while I am waiting to see my Rheumatologist? I’ve had to wait all through the holidays while their offices were closed after being told my PCP feels I have Lupus but need a diagnosis from a specialist. I am miserable...I’ve added in vitamins and supplements...I want to know what is wrong with me. Symptoms: RF: normal ANA: positive Headache Facial rash Facial psoriasis/eczema Dry eyes Sores in nose Dry mouth Neck pain Tingling arms/fingers/hands Tremors in hands Swollen painful joints....
  • Lupus

    Can my lupus cause my birth control to not work?
  • 1 month ago

    Feel like dying slowly

    I've been tested ANA positive since 2013. Yet not a single doctor (seen 3) since then does anything about it nor cares... ANA positive? Ok great, bye! My condition has deteriorated greatly! Now I get unexplained attacks that we almost have to go to ER (the only thing that's stopping us is the ER bill). My first time I tested ANA positive : 1:320. No treatment was given. Now I've tested ANA positive (since 2013 - 2017 always ANA positive) 1:160. My current doctor told me : "No rheumatologist....
  • 1 month ago

    Lupus and pets

    my mom has lupus, along with other medical problems like arthirtis and we currently had to send away a dog that was very dear to me, and as she will not let us get another dog i was wonderin what other animals would be safe for us to have and not hurt my mom.
  • 2 months ago

    Lupus - a trigger - before and after diagnosis?

    For as long as I can remember, I have been plagued with sinus infections. Starting at age 17 I began having Migraines with Auras which continue. I had a complete hysterectomy at 30 and developed Bells Palsy at 38. I was diagnosed with Lupus at the age of 43. I began taking low levels of Plaquenil and remarkably it reduced the symptoms & I returned to work after a 2-year layoff. I modified my diet, stress levels and workload and except for flu and sinus infections (which usually lasted 10x longer....
  • 2 months ago

    Blood count numbers

    I have had my CBC done a few times in the last 6 months and the same as 5 things are off on them all. RDW SD is 34.2 Nuer auto is 69.5 MCHC 37.2 MCV 79.9 Lymph % 21.4 The rest are normal or borderline, are any of these concerning? Or anything I should be asking about?
  • 3 months ago

    Systemic Lupus Erythematosus - Possible breakthrough drug Lupuzor

    Finally there could be hope for millions of sufferers of Systemic Lupus Erythematosus. Today UK company ImmuPharma announced the last patient had received their last dose in its Phase 3 trial of SLE drug Lupuzor (also known as IPP-201101 or Rigerimod) with the trial due to end in January 2018 and readout shortly afterwards. Results so far have been impressive, with the Phase 2b trial indicating Lupuzor could be more efficaceous, faster acting and lack the side effects of GSK's Benlysta (Benlimumab....
  • 3 months ago

    Lupus or scarcoidosis

    My blood test show. ANA positive (speckled pattern) ESR elevated and my ACE elevated. Dr is not sure if it's lupus or scarcoidosis. Anyone have any thoughts on this? I was also reading a book that Sulfa can cause a flare in Lupus patients. In Dec 2016 I had a UTI and my primary physician gave me sulfamethoxazole..... a certain antibiotic. This was what it said on the Lupus site "Bactrim and Septra are often prescribed for bacterial infections, especially urinary tract infections. They are....
  • 3 months ago

    Muscle tears-

    I have lupus and rheumatoid arthritis I have noticed that I seem to get muscle tears very easily is this due to these diseases? I also have tendinitis in numerous tendons
  • 3 months ago

    I need answers o lupus as everything comes up negative yet naturopath says it positive and I have rashes

    Rash on face hands and it won't go away.Im tired all the time.One doctor said it looks like Lyme disease.Dies anyone think they can help as I'm at my wits end.My life is passing me by.