• over 1 year ago

    I may have lupus...

    I've been dealing with chest pain for over a year, almost 2. When it first started I had fluid around my heart and lungs and was diagnosed with pericarditis. After a couple of months the pericarditis started to go away but the chest pain is still constant.

    The initial Lupus tests came back that I didn't have it. I did blood work yesterday and they are doing a test that is more rare because the doctor said in very rare cases it doesn't show up on the other one.

    My question is, has anyone else been diagnosed like this?

    It makes sense that's what I have all my symptoms are lining right up and we've tested for so many other things and nothing is showing up. Its so frustrating having people look at me like I'm crazy and doctors telling me they don't know what's wrong with me and just basically giving up and sending me on to another doctor because they don't know what else to try.