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  • 7 days ago

    Negative ANA with Lupus symptoms

    Is it possible to have Lupus even with a negative ANA? I was recently ill with bronchitis (May 26, 2019). After two days on antibiotics I had what I presumed to be pink eye. After 5 days of antibiotic eye drops (started May 30, 2019), my eye was not as red, but it still looked bad. A week later I saw my optometrist whom immediately stated that she believed I had an autoimmune of some sort; possibly Lupus. My PCP ran ANA, Rheumatoid Factor, Uric Acid, C-Reactive Protein, Sed Rate, TSH, and CBC with....
  • 1 month ago

    New to lupus

    I recently found out I had lupus. My bloodwork also showed positive for rheumatoid arthritis and had fibro for 20 years. Does anyone else have 4 or more auto immune diseases to live with. I thought fibro was tough. How do you deal with several?
  • 3 months ago

    Health insurance for rehab

    Hi! It's hard for me to ask someone familiar about this. So I require outside help... I'm looking for drug rehab for my sister. She doesn't have any insurance because she didn't work for a long time. I found info about rehabs where you can have treatment without insurance ( ) . Anybody heard about such centers before? What kind of documents do they need? And what living conditions do they propose?
  • 3 months ago

    Did forced revaccination of MMR at 53 cause auto immune disorder?

    I was forced to re vaccinate (baby boomer) due to a shed antibody for MMR, I worked medical field, but after transferring they caught up to me and tested me. It was forced. I had nothing but problems after the forced re vaccination. They wanted to give me a booster, but told them to titer me to determine if the first Vaccine had taken. It had. I reported ill effects I seemed to have for at least a year, if not permanent after the vaccination. I then learned through multiple sources there is sometimes....
  • 3 months ago

    A page that keeps track of new treatment options for lupus

    Anyone else see this thread on reddit? Feb 11, 2019 Web page I made that tracks SLE / Lupus treatment-related news, research, clinical trials, and updates" Good for seeing what's around the corner, in my opinion. Lupus Treatment Report Where do you get your treatment updates and those of you who keep up... how do you keep up? Any other good sources/links? Thanks
  • 5 months ago

    lupus and medical marijuana

    has anyone ever tried it for muscle and joint pain
  • 5 months ago

    Lupus Pain

    The past few days I've had so much pain from my flare that all I can think about is a CURE. Anyone have info on the best and latest?
  • 5 months ago

    Lupus joint pain

    Just wondering if anyone else has noticed the joint and muscle pain seems stronger in muscles and joints that we're previously injured. I have had severe joint pain in parts of my hands that were burnt approximately 20 years ago. Along with pain in several joints that have been sprained, or injured somehow in the past. The joints on the opposite side of my body will also ache at times but no where near the same severity. I am new to this lupus thing and am still trying to understand my flare....
  • 5 months ago


    I’m a 61 yr old women that has been experiencing Pseudogout since 2006. It started in my ankles, then my elbows . but I was not diagnose until 2014 when I was referred to a rheumatologist for lupus. I’m currently on hydroxychloroquine, methotrexate , folic acid and levothyroxine . My question is what do you do when you are experiencing an attack. Because at the moment I’m experiencing an attack in my knees more painful in my left side.
  • 7 months ago

    Help for photosensitive lips

    Please can anyone help me. I need some tips for what to apply to my lips. I have been applying a 50+ lip balm but have ended up with blistered lips which then got infected. So painful. Am on anti biotics and they are clearing up - but I am scared to apply anything now. Was diagnosed with lupus in March and am on 400mg of plaquenil. Does anyone have any advice? I wear a hat when I'm out walking and don't walk during the hottest part of the day. I've considered a mask - Help