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  • Call for Lupus Thrivers to Participate in a Anonymous Research Survey

    Hello fellow lupus thrivers. I have been diagnosed with SLE for 14 Years. I am a thriver, counselor and researcher fighting for our quality of life. I have finished putting together my research project on quality of life for SLE individuals. This survey is web based, anonymous and easy to take. We can contribute to the knowledge available on the factors that impact our quality of life. Help me to demonstrate to doctors, counselors, caregivers and families, what factors help versus hamper quality....
  • 16 days ago

    Constant back and leg pain.

    I will not go into all the medications I take to curb my back and leg pain, let's just say there are several and one is morphine. I never was a fan of taking a lot of medications, but, if I want to do anything at all in life, I have no choice. I am a 57 YO male, I had back surgery in 2012, it was successful considering I could not walk, drive, or even pee. I have what is called failed back surgery. For me, it was a success. Nevertheless, does anyone know if medical marijuana would get me off....
  • 1 month ago

    Vision problems from autoimmune disorder?

    I have been dealing with autoimmune symptoms for quite some time that are widespread. I had tests done last year with ANA of >=1:640 and I was told they would monitor possible lupus symptoms. Anyway, I have started getting weird cloudy blurry vision randomly, especially after eyes are exposed to sunlight without sunglasses. A couple of times, my vision actually went black from the peripheral inward and then vision came back. Only lasted a couple of seconds. Has anyone heard of this before?
  • 1 month ago

    High ANA & Undiagnosed autoimmune disorder with list of symptoms

    I started dealing with autoimmune symptoms over a year ago (I.e. itchy, rashes that scarred, fatigue, nerve issues such as tingling and vibrating, muscle twitching, numbness in toes when cold that discolor, occasional pain in joints. The most recent and slightly disturbing is eye problems. They go blurry sometimes especially after sunlight and a couple times went black for a second. All my symptoms tend to come in flares especially after stress. My ANA was >=1:640 speckled and homogeneous. No....
  • 2 months ago

    Lupus? RA? Sjogren’s? Do I need a second opinion?

    I just met with my Rheumy and he offered no diagnosis and no path forward and I am both shocked and frustrated. For the past 3 years I have been dealing with joint pains (fingers, hands, wrists, hips, knees, ankles, and elbows). Every morning I wake up feeling like I was hit by a bus. After about an hour or so, I am able to move around and my joints feel bruised. It is symmetrical. For example, both left and right pointer fingers hurt worse than all other fingers throughout the day. I have clear....
  • 2 months ago

    I may have lupus...

    I've been dealing with chest pain for over a year, almost 2. When it first started I had fluid around my heart and lungs and was diagnosed with pericarditis. After a couple of months the pericarditis started to go away but the chest pain is still constant. The initial Lupus tests came back that I didn't have it. I did blood work yesterday and they are doing a test that is more rare because the doctor said in very rare cases it doesn't show up on the other one. My question is, has anyone....
  • 2 months ago

    great news! 3 cases where people have cured their lupus with high dose Vitamin d3

    There is a brand new article out describing three cases where people have cured their lupus with high dose Vitamin D3 here is the link>>>>
  • 2 months ago

    Sun allergy maybe?

    I'm not quite sure what's going on with me. I'm a teenager- I was diagnosed with mono at the beginning of January. It's now July, and all my symptoms had gone away. I started working as a lifeguard and swim instructor this summer so I spend 4 or 5 + hours in the sun almost everyday. I've never had any reaction to the sun before, except I've never spent this much time outside before. I've been getting this red rash all the way down the inside/tops of my arms and legs. It's....
  • 3 months ago

    feeling sick ALL THE TIME

    I almost never do things like this. I respect my doctors and other medical professionals immensely, but I am genuinely desperate. In October (about 5 months ago) I visited my PCP after feeling sickly for weeks on end. I had been having low-grade fevers on a daily basis, joint pain and general aches, and fatigue so bad I would sleep for 16 hours. My blood work came back with normal CBC, but positive for mono. I was given prednisone (which did nothing) and told I would feel better in a week or two....
  • 3 months ago

    Abnormal blood work. Cause for concern?

    About 2-3 years ago I was constantly sick but didn’t know why. Just didn’t feel well, rapid heartbeat, dizziness, etc,etc. would feel like I had the flu every month for a couple years. I feel a lot healthier these days due to diet, exercise and supplements but my blood work is still not normal. Is it any cause to worry? My doctor said to see her for more blood work in a year. This is what is abnormal: 1. DHEA- 292 mcg/dL (normal is 23-266) I got this tested a year ago and it was 268 so it’s slowly....