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  • Lupus and low Immunoglobulin A levels (IgA)

    I was diagnosed with SLE 6 years go and am 23 years old. I also have celiac disease. I recently found out that my IGA (Immunoglobulin A) levels were extremely low. I take 200 mg of Plaquenil 1 x per day and I was wondering if that might be the cause. Has anyone else experienced this? I tried looking online but results were slim. Thanks for your help!
  • 10 days ago

    Help for photosensitive lips

    Please can anyone help me. I need some tips for what to apply to my lips. I have been applying a 50+ lip balm but have ended up with blistered lips which then got infected. So painful. Am on anti biotics and they are clearing up - but I am scared to apply anything now. Was diagnosed with lupus in March and am on 400mg of plaquenil. Does anyone have any advice? I wear a hat when I'm out walking and don't walk during the hottest part of the day. I've considered a mask - Help
  • 1 month ago

    Looking for health insurance for lupus

    Hi, I am moving to US and wondering if I can buy health insurance overthere to cover all of the medical cost. If yes, which insurance would you recommend? How much would it cost per month? And will it cover everything like doctor visit, prescriptions, blood tests,..? I am 39 years old and have Lupus for 1 year. Any suggestions would be much appreciated!
  • 2 months ago

    Flares?

    Hi, I was diagnosed with Lupus 11 years ago, I also suffer with depression, fybromyalgia and psoriatic arthritis. Roughly 3 years ago I had what I assumed were lupus flares. These take on a distinct pattern, not wanting to eat or drink, hot and cold chills, excessive sweating, loss of weight and vomiting if I should try to eat or drink, these last 5-6 days then takes me a couple of weeks to get over them. I was admitted to hospital last week following quite a severe 'flare'? these episodes....
  • 2 months ago

    Weird symptoms

    Here it goes: I'm a 24 female with historic of chorionic tonsillitis but had my tonsils removed at age 17. On April I started having heart palpitations randomly so I went to the ER, general doctor there asked for an ECG which come back normal so he prescribed me Xanax 0,5mg/ once a day for 5 days, after 10 days the palpitations stoped. Couple of weeks later they come back this time I also got Ill with zebra I think was a bad cold, I had fever of 38, headaches and mucus. I noticed it took me a....
  • 2 months ago

    Chest pain moving

    Hello, I am 36 and I have SLE, Sjogren's and Antiphospholipid syndrome. This spring after a few hours spent in cold weather, I had fever, a lot of night sweating and lung pain, trouble breathing. CT showed a pleurisy with very little liquid that needed no drainage. They said it must be from Lupus. They gave me paracetamol (acetaminophen) told me to rest and sent me home. Since then the fever went away but the breathing problems and pain are still present. I made a new RX and one doctor said it....
  • 2 months ago

    Positive ANA, White Blood Cell Count, Lupus?

    Hi, I'm a 22 year old female college student. I'm the anxious type so I was wondering if someone could give me some info. So, I've been through a few blood tests and there are a few different things that I'm concerned about. For one, my Antinuclear Antibody came back as positive, and that by itself isn't a huge deal. It's just that, on top of a positive ANA, my white blood cell count is slightly risen above average. I don't have an exact number, but that's what my....
  • 2 months ago

    feeling sick ALL THE TIME

    I almost never do things like this. I respect my doctors and other medical professionals immensely, but I am genuinely desperate. In October (about 5 months ago) I visited my PCP after feeling sickly for weeks on end. I had been having low-grade fevers on a daily basis, joint pain and general aches, and fatigue so bad I would sleep for 16 hours. My blood work came back with normal CBC, but positive for mono. I was given prednisone (which did nothing) and told I would feel better in a week or two....
  • 3 months ago

    Constant back and leg pain.

    I will not go into all the medications I take to curb my back and leg pain, let's just say there are several and one is morphine. I never was a fan of taking a lot of medications, but, if I want to do anything at all in life, I have no choice. I am a 57 YO male, I had back surgery in 2012, it was successful considering I could not walk, drive, or even pee. I have what is called failed back surgery. For me, it was a success. Nevertheless, does anyone know if medical marijuana would get me off....
  • 5 months ago

    Vision problems from autoimmune disorder?

    I have been dealing with autoimmune symptoms for quite some time that are widespread. I had tests done last year with ANA of >=1:640 and I was told they would monitor possible lupus symptoms. Anyway, I have started getting weird cloudy blurry vision randomly, especially after eyes are exposed to sunlight without sunglasses. A couple of times, my vision actually went black from the peripheral inward and then vision came back. Only lasted a couple of seconds. Has anyone heard of this before?