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  • Severe menstrual cramping with Fibromyalgia.

    Hi everyone. I'm new to the community, and really hope someone can help me on this subject because I can't take this pain anymore. 2 years I started to have really bad pain when it came time to ovulate and would stop after my period ended. Everything I was able to research had me thinking I had endometriosis. I went to my gyno and told them what was going on and they did a bunch of tests plus a exploratory surgery to check for endo. Nothing came back. I was told it was probably IBS. Now,....
  • 1 month ago

    Low on spoons..

    Today I'm running on only a few spoons. Tying my shoes and putting my hair up was exhausting. Explaining to my husband how I feel today made me feel like a burden. I have had fibromyalgia for 10 years but only got an official diagnosis 16 months ago, because of my age. I'm 36. I thought I was just getting older lol. I have become well versed in fibromyalgia and run support groups in and around my hometown. If anyone has and questions or concerns feel free to ask me anytime. Chances are I....
  • 1 month ago

    Just got diagnosed with fibromyalgia.....??????

    I thought I was crazy at first....with all the pain I experience in a everyday...and now I experience a new pain all the time... I hate that I’m not the same person...:(
  • 1 month ago

    Diagnosis

    Hi there I have been having symptons for a couple of years now and the doctors can't seem to figure out exactly what I have. It first started in 2016 when I got a headache that felt like it was cracking my head open, just after the headache started I battled to look at any lights. This got increasingly worse and I started getting a fever. I was exhausted and could not stay awake. About 3 hours later I went to the doctor. They admitted me into hospital straight away suspecting meningitis. I was....
  • 1 month ago

    Lessons Learned from Fibro Pt. 2

    I know my last post was lengthy which is why I needed to break it up. I have a lot to say and hope by reading this that it is helping you. Food plays a tricky part in all of this. A lot of the medications, especially the pain meds and the psych meds, interfere with how our bodies break down food as well as toxins. It is imperative to pay attention to the signals your body is sending. If you are feeling full all the time with little to no appetite you need to talk to your doctor. If your skin or eyes....
  • 2 months ago

    Is it fibromyalgia or a misdiagnosis?

    Is it fibromyalgia or a misdiagnosis? Please get more opinions! My 34 yr old son who lives several states away from me was diagnosed was fibromyalgia over a year ago then his symptoms just got worse. He got pneumonia 6 months ago and when more tests were done he was diagnosed with Hodgkin’s. Already at Stage 2. Since then he is now at stage 3 and has to have a bone marrow transplant. Please keep us in your thoughts and I truly hope none of you or anyone ever has to go through this ordeal!
  • 2 months ago

    Last but not least

    This diagnosis can hit you hard. Be patient with yourself. Educate yourself and learn to communicate with others about how you are feeling. Socializing can be hard when all you want to do is curl up in the fetal position in pain. What I have learned is that by doing the opposite, you can have greater control of the pain. It is not going to go away. It will change how you feel, what you do, and how your life is. It does not have to define you in a negative way. Take a deep breath and know you are....
  • 2 months ago

    Fibro symptoms for chest?

    Hi everyone. Ive had fibromyalgia for a number of years now and im only 27. The past year or so i get a really bad pain in my shoulder. But this past week it hasnt been going. It seems to be getting worse and spreading around my chest and neck making it difficult to breath. Does anyone else have these problems??
  • 2 months ago

    Fibromyalgia

    Hi. I am a doctor and was diagnosed with fibromyalgia about 6 months ago. I am 50 years old and have been in severe pain for the past 2 years. I just thought i was overworked. It got to the point where i couldnt sleep properly at night for months and then my ability to focus decreased. I was just holding myself together just enough to deal with my patients. Once diagnosed i was put on pregabalin and vit D which helped remarkably. I was able to improve by 90percent. I am still tired but the sleep....
  • 2 months ago

    Lessons Learned about Fibro Pt. 1

    Hello Everyone, I am writing this post in order to help others who have been suffering with this diagnosis. I was diagnosed with this and Chronic Fatigue Syndrome or CFS in 2012. At that time there was not a lot of information out there and even fewer doctors who had come across this. I was initially sent to a psychiatrist for "behavioral modification" in order to address this as it was much more commonly thought to be a psychiatric disorder instead of a neurological one. Thankfully the....