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  • 1 month ago

    Just got diagnosed with fibromyalgia.....??????

    I thought I was crazy at first....with all the pain I experience in a everyday...and now I experience a new pain all the time... I hate that I’m not the same person...:(
  • 1 month ago

    Strange Symptoms prior to Fibro Diagnosis?

    Did anyone experience strange symptoms over and above the normal ache and fatigue just prior to your Fibro diagnosis? For example, I would wake up in the middle of the night with only my legs sweating.
  • 1 month ago

    Diagnosis

    Hi there I have been having symptons for a couple of years now and the doctors can't seem to figure out exactly what I have. It first started in 2016 when I got a headache that felt like it was cracking my head open, just after the headache started I battled to look at any lights. This got increasingly worse and I started getting a fever. I was exhausted and could not stay awake. About 3 hours later I went to the doctor. They admitted me into hospital straight away suspecting meningitis. I was....
  • 1 month ago

    Lessons Learned from Fibro Pt. 2

    I know my last post was lengthy which is why I needed to break it up. I have a lot to say and hope by reading this that it is helping you. Food plays a tricky part in all of this. A lot of the medications, especially the pain meds and the psych meds, interfere with how our bodies break down food as well as toxins. It is imperative to pay attention to the signals your body is sending. If you are feeling full all the time with little to no appetite you need to talk to your doctor. If your skin or eyes....
  • 2 months ago

    University Medical College study shows great success treating fibromyalgia

    The doctors medical group at university of Tel Aviv did a study using hyperbaric chamber to treat fibromyalgia. They reported 100% success, defined by patients no longer needing pain medicine. After the study, they put the control group through the treatment, and they too had 100% success. This same study was replicated by the US National Institute of Health. They changed the protocol but still reported amazing success at https://www.ncbi.nlm.nih.gov/m/pubmed/30747099 . The original protocol called....
  • 2 months ago

    Case study suggests that fecal microbiota transplant may alleviate fibromyalgia symptoms

    Here's the reference: Fecal Microbiota Transplantation for Fibromyalgia: A Case Report and Review of the Literature Open Journal of Gastroenterology PP. 131-139 Author(s) T. Thurm1, J. N. Ablin2, D. Buskila3,4, N. Maharshak1* This was quite encouraging to me, has anyone tried this? It seems that FMT for fibro should be an urgent study topic with clinical trials ongoing.
  • 2 months ago

    Fatigue

    I have had fibromyalgia for about 7 years. I manage the pain okay most of the time with my meds. But the fatigue never goes away. I am wondering how others deal with their fatigue. Any advice or suggestions are welcome.
  • 2 months ago

    Is it fibromyalgia or a misdiagnosis?

    Is it fibromyalgia or a misdiagnosis? Please get more opinions! My 34 yr old son who lives several states away from me was diagnosed was fibromyalgia over a year ago then his symptoms just got worse. He got pneumonia 6 months ago and when more tests were done he was diagnosed with Hodgkin’s. Already at Stage 2. Since then he is now at stage 3 and has to have a bone marrow transplant. Please keep us in your thoughts and I truly hope none of you or anyone ever has to go through this ordeal!
  • 2 months ago

    Last but not least

    This diagnosis can hit you hard. Be patient with yourself. Educate yourself and learn to communicate with others about how you are feeling. Socializing can be hard when all you want to do is curl up in the fetal position in pain. What I have learned is that by doing the opposite, you can have greater control of the pain. It is not going to go away. It will change how you feel, what you do, and how your life is. It does not have to define you in a negative way. Take a deep breath and know you are....
  • 2 months ago

    Fibro symptoms for chest?

    Hi everyone. Ive had fibromyalgia for a number of years now and im only 27. The past year or so i get a really bad pain in my shoulder. But this past week it hasnt been going. It seems to be getting worse and spreading around my chest and neck making it difficult to breath. Does anyone else have these problems??