Responses

  • 1 month ago

    RE: Just got diagnosed with fibromyalgia.....??????

    I'm so sorry to hear that you have this horrible condition too. I'm now 28 and I've had fibro since I was about 14. It has impacted my life in such a negative way. I was rarely in school and on home tutoring most of the time. Because I was never in school I never had friends, nor could I engage in the typical teenager activity. I'm at a point where I've accepted that the life I had planned for myself it's just not compatible with fibro. There is a very important psychological aspect to fibro that I feel goes completely unaddressed. For me, I've found that I've had to essentially go through a grieving process for the person who I was and who I thought I would become. It's extremely painful when you have a passion for something and because of this condition, regardless of how much energy and work you put into it, it's just not always practical. And you have to allow yourself to grieve for the person you were before you got diagnosed. Because when you deal with the constant symptoms and effects of your quality of life with fibro a part of you does die. Making it worse is the attitude most people take towards it, belittling you, making you feel like you're using it as an excuse because you're lazy. But trust me, you are not lazy! You have a legitimate condition that affects more people then most of us could even fathom! And as horrible as this process is, know you're not alone, that there are many of us just trying to hang in there with you, and that we need to lean and support each other because most of the world doesn't get it. I don't mean the overtone of this message to come across depressing and hopeless. There are a lot of adjustments that you're going to have to make, but it doesn't mean that there aren't still opportunities and wonderful things in life that you can be a part of
  • 1 month ago

    RE: Just got diagnosed with fibromyalgia.....??????

    Well welcome to our club. I remember when I got diagnosed I was relieved that I wasn't crazy, but then reality set in, now you start the battle of the "spoons". Best advice, always have a strong support system, even if it's message boards.