Responses

  • 5 months ago

    RE: Just got diagnosed with fibromyalgia.....??????

    I'm so sorry to hear that you have this horrible condition too. I'm now 28 and I've had fibro since I was about 14. It has impacted my life in such a negative way. I was rarely in school and on home tutoring most of the time. Because I was never in school I never had friends, nor could I engage in the typical teenager activity. I'm at a point where I've accepted that the life I had planned for myself it's just not compatible with fibro. There is a very important psychological aspect to fibro that I feel goes completely unaddressed. For me, I've found that I've had to essentially go through a grieving process for the person who I was and who I thought I would become. It's extremely painful when you have a passion for something and because of this condition, regardless of how much energy and work you put into it, it's just not always practical. And you have to allow yourself to grieve for the person you were before you got diagnosed. Because when you deal with the constant symptoms and effects of your quality of life with fibro a part of you does die. Making it worse is the attitude most people take towards it, belittling you, making you feel like you're using it as an excuse because you're lazy. But trust me, you are not lazy! You have a legitimate condition that affects more people then most of us could even fathom! And as horrible as this process is, know you're not alone, that there are many of us just trying to hang in there with you, and that we need to lean and support each other because most of the world doesn't get it. I don't mean the overtone of this message to come across depressing and hopeless. There are a lot of adjustments that you're going to have to make, but it doesn't mean that there aren't still opportunities and wonderful things in life that you can be a part of
  • 5 months ago

    RE: Just got diagnosed with fibromyalgia.....??????

    Well welcome to our club. I remember when I got diagnosed I was relieved that I wasn't crazy, but then reality set in, now you start the battle of the "spoons". Best advice, always have a strong support system, even if it's message boards.
  • 1 month ago

    RE: Just got diagnosed with fibromyalgia.....??????

    Hello and I’m so sorry that you have been diagnosed with Fibromyalgia. I was diagnosed this year after about a two year development time. I COMPLETELY understand the thought of hating who you have become and feeling like your body has betrayed you. Or at least that’s how my version plays out. 2 years ago I was a strong, super fit person who was training for a marathon and today my idea of a marathon is getting up, showered and dressed for the day! Almost everything I did in my free time involved enjoying the strength of my body ( running, mountain biking, hiking, backpacking, rock climbing...you get the idea). Basically almost everything I did was outside using my body, and in hindsight, taking what my body could do for me for granted. Every time I lost the ability to do something I love it was like a little death of a good friend inside. I have had to mourn for my old comfortable self where everything seemed to make sense and give into the idea that I was going to have to reinvent a new way of living to try to move on and be happy again. I seemed to have gone through stages of grief. Right now I’m getting over the anger stage and moving toward acceptance. There is a part of me that carries on and I have to wait for the universe to show me the lesson it has in store for me. I have been through many painful situations in my life and each time I have come out the other side having learned something valuable and stronger for it. The only thing I can suggest is to place yourself around people who love you enough to let you mourn and transform without judgement and try to be more mindful about life and be more grateful for what you DO have. It is NOT easy! Learning about mindfulness and starting a meditation practice has helped me. Don’t tell yourself you CANT do something. Tell yourself I can’t do it that way anymore so how can I still enjoy what I am passionate about in another way. This too is very hard and takes a lot of practice. These are just a few of my thoughts from experience and things that have helped me. Take what you like and leave the rest just take charge of your journey or it may eat you alive. Ok, a little dramatic but you get the idea.