• 1 month ago

    Lessons Learned from Fibro Pt. 2

    I know my last post was lengthy which is why I needed to break it up. I have a lot to say and hope by reading this that it is helping you.
    Food plays a tricky part in all of this. A lot of the medications, especially the pain meds and the psych meds, interfere with how our bodies break down food as well as toxins. It is imperative to pay attention to the signals your body is sending. If you are feeling full all the time with little to no appetite you need to talk to your doctor. If your skin or eyes become yellow you need to get to an emergency room. You MUST drink a lot of water. Our kidneys and liver are easy targets for the breakdown of the medications to damage. If you are not drinking enough water or your body isn't having regular bowel movements you are at risk for severe damage. How often is a normal bowel movement? You should be having at least one a day, every day. Certain pain meds can cause you have to have severe chronic constipation. When that happens the food and toxins you ingest do not move through the system. As they break down they release poison into the body. Over time this can make you even more sick than you already feel. This can even cause permanent damage if it goes on too long. I said before that I spent five years in great stomach pain all due to the medications shutting down my digestive system. I now suffer the consequence of that in having damaged kidneys and a very slow metabolism. I had to advocate for myself and refuse certain medications. I had to learn from nutritionists what my body can process and how to slowly rebuild my system. It has been a year now from that monumental situation and I am just starting to reap the benefits.
    Since I brought it up allow me a moment to discuss the medications. Almost everyone I have ever come across when they experience pain, especially ongoing chronic severe pain just want it to stop by any means necessary. Please do not be disheartened by what I am about to say. Nothing you do will ever make the pain you are enduring go away. That is an incredibly difficult thing to accept but it is undeniably true. The pain killers they give you, the opioids, will reprogram your brain and ultimately make your pain worse. That is not going to be a popular statement but it is a true one. So what does that mean? Understanding and accepting that pain is now a part of your life will take you much farther along the path to finding those ways that will help. Help in this sense is more about understanding your good days and your bad days, communicating your needs to those around you, educating others, advocating for yourself, and finding your path to peace. This sounds like nonsense doesn't it? I know, sounded that way to me too at first. Until the meds almost killed me.
    Time to get a little uncomfortable, if you are ready. I was on a little triangle of medications that created synthetic heroin. Yep, heroin. Ain't that something? I was on Lyrica, Percocet, and Soma for pain and spasm management. I was also on Effexor (venlafexine) and Lamictal (lamotrigine) for the psychological effects of long term diagnosis for chronic pain. The first three created the heroin. I would literally sleep for days. When I did wake up I felt incredibly sick all the time. Once I took my medications I would feel better for a short while until it was time to take meds again. If I missed any doses due to being asleep the sick cycle would start back up. The psychotropics were for "severe depression." Of course I was depressed in the beginning! Who wouldn't be? Instead of helping through therapy I was given drugs that I did not need. These all combined in my body and my brain to wreak havoc. It was by accident that this cycle was broken. I had a doctor that took me off the Soma and shortly after due to a screw up in writing the prescriptions the Percocet wasn't sent out on time which led to withdrawal. Now I am not advocating that anyone go through this without having medical oversight. It was awful as anyone who has experienced it can tell you. Once I was through it I realized that I was feeling a lot better. Yes, I was still in pain and yes, I still had fibro. I just wasn't sick all the time.
    Then came the psych meds. I had spent the last year on them feeling incredibly suicidal. I did not reach out for help. I did not talk to my family. I just had all these horrible thoughts in my head all of the time. I truly thought about dying every day. After I was no longer on the synthetic heroin I discovered that Effexor and Lamictal if given to those who do not have a correct mental health diagnosis can experience suicidal tendencies. For me, I made the decision to come off of them. I cannot tell you that it is wise for you to do the same. That is something you have to do decide and you have to talk to someone about. For me, and my situation it was the best thing I have done in a very long time. I want to make it absolutely clear though that these decisions should be made through wise counsel.
    Now that I am no longer on these meds I have designed a regimen of things that help me a lot. I have made a concerted effort to wake up at the same time every day. I do simple stretches, simple exercises, and spend time constructively. If I am having a terrible pain day, I slow down, accept that I am in pain, communicate with others, and practice patience.