• 6 months ago

    Advise would be greatly appreciated

    So for the past 4 years or so I've been feeling aches and pains in my body and random bursts of pain, which seemed to only get worse and worse as I grew older. I'm now to the point that it's sometimes hard to get out of bed, my face swells, i have horrible headaches, im sore all over no matter what, and always in pain. If I bend my legs for a good 2 mins or so sitting down its even more sore. I'm currently 18 and have been feeling this way since I was 14. I'm now in university and it's affecting me greatly. I got diagnosed with Fibro last week and I'm having trouble coping/understanding it. My RA tried her best to explain it to me which I get the pain and nerves part but she didn't really explain the mental aspect of it. Like I'm having a really hard time accepting it I guess? Like sometimes it's just hard for me to go to school and I guess I don't feel valid to miss those days because I'm not feeling well, because you physically can't see anything wrong with me. I'm in the process of trying to get accommodations for it through my school, but I feel like my professors won't really understand. I'm going to start physical therapy soon and I don't know how its going to make me feel since I already feel bad on my own from doing nothing, and I haven't been prescribed any medication yet. I just I don't really know what to do because I just honestly don't feel valid, I don't really know how to explain it. My mom seems to understand a little bit but my dad is giving me the impression of "its really not that bad come on" which I mean I can understand he can't see it, but if he knew what pain I go through on a daily basis he'd understand. Like sometimes my clothes make my skin burn, any light scrape on my skin burns, or if I hit my arm or even lay my arm on my desk my skin becomes inflamed and hurts. I'm just kinda lost in what to do because I don't know anyone that knows anywhere close to being me. I feel really bad taking days off school and feel like I'm being dramatic almost, but I can't help the way I feel, and I can't really make anyone understand. I don't know if anyone could like um give any advice or anything it would be greatly appreciated.

Responses

  • 1 month ago

    RE: Advise would be greatly appreciated

    So sorry you experiencing this!
    I'm so tired of "it's all in your head". It is a very real disease! I've had that happen to me and I fought back. I guess, what people don't understand about this disease, the side effects. It's not just that you feel like you've got the flu all the time but the headaches, insomnia, irritable bowel, pain, dry eyes and mouth, sensitive skin (feels like bugs crawling on you). And that's just a few.
    As for me, I had to quit a high paying job because of this. Certainly did not want to.

    I have some tips on how you can feel better (without any meds, since I'm not a med consultant to prescribe you anything!)
    I have a heat pack on me somewhere most of the time, I make my own to suit the size and shape I need, filled with a good quality wheat. I microwave mine . I normally have it on where it hurts the most at the time, say my lumbar spine has a burning ache, I would place it there till it needs heating again. The relief don’t last for long but it helps. Any relief though short lived helps the mind rest. Also have a look here: WebMD have posted some extremely useful tips about our condition https://www.webmd.com/fibromyalgia/ss/slideshow-pain-fatigue
    Also don't underestimate a good night sleep. You might want a special bedding that is suitable for your condition: https://www.sleepfoundation.org/articles/fibromyalgia-and-sleep
    https://www.talkaboutsleep.com/best-mattress-for-fibromyalgia/
    If you can't afford a new one, then here's a nice trick I've learned - put a pillow between your knees if you're a side-sleeper. It reduces the hip tension and your pain in the result.

    Hope you're doing well, jinxyix. Don't hesitate to contact me if you need an advice or just want to talk about your condition.