• 5 months ago

    Advise would be greatly appreciated

    So for the past 4 years or so I've been feeling aches and pains in my body and random bursts of pain, which seemed to only get worse and worse as I grew older. I'm now to the point that it's sometimes hard to get out of bed, my face swells, i have horrible headaches, im sore all over no matter what, and always in pain. If I bend my legs for a good 2 mins or so sitting down its even more sore. I'm currently 18 and have been feeling this way since I was 14. I'm now in university and it's affecting me greatly. I got diagnosed with Fibro last week and I'm having trouble coping/understanding it. My RA tried her best to explain it to me which I get the pain and nerves part but she didn't really explain the mental aspect of it. Like I'm having a really hard time accepting it I guess? Like sometimes it's just hard for me to go to school and I guess I don't feel valid to miss those days because I'm not feeling well, because you physically can't see anything wrong with me. I'm in the process of trying to get accommodations for it through my school, but I feel like my professors won't really understand. I'm going to start physical therapy soon and I don't know how its going to make me feel since I already feel bad on my own from doing nothing, and I haven't been prescribed any medication yet. I just I don't really know what to do because I just honestly don't feel valid, I don't really know how to explain it. My mom seems to understand a little bit but my dad is giving me the impression of "its really not that bad come on" which I mean I can understand he can't see it, but if he knew what pain I go through on a daily basis he'd understand. Like sometimes my clothes make my skin burn, any light scrape on my skin burns, or if I hit my arm or even lay my arm on my desk my skin becomes inflamed and hurts. I'm just kinda lost in what to do because I don't know anyone that knows anywhere close to being me. I feel really bad taking days off school and feel like I'm being dramatic almost, but I can't help the way I feel, and I can't really make anyone understand. I don't know if anyone could like um give any advice or anything it would be greatly appreciated.