• 4 months ago

    It's criminal

    Hello , I'm so sorry about your pain. I, totally, understand you when you say, "I have to mentally prepare for hugs". We now live by 3 of our grandchildren. When we lived hours away, I was able to visit them, for days, and then looked forward to going home. People are always telling me that being near our grandchildren is so great, I should be happy. FM has robbed me of joy, of dignity of even wanting to live until tomorrow. I get up every day hoping to not hurt, hoping for joy, etc., but I haven't found it. There really aren't any drugs to help us not hurt, but do help our quality of life. Unfortunately, the drugs that can do this are now considered a controlled substance. I, too, have lived with FM for more than 3 decades, I finally, have the right medication and now, they are almost unavailable, why, because criminals and drug addicts have abused them so they, the pharmacies, turn me down. The same medications that I have been taking for 10 years, may kill me? I don't care anymore, if it does kill me, let it, it would be better than the agony I feel 24/7 without the meds. I wish there were advocates for us chronic pain sufferers. The real criminals are those who treat us with no dignity.

Responses

  • 4 months ago

    RE: It's criminal

    Do what you think is necessary, no one can advise you on your state, both mental and physical.
  • 3 months ago

    RE: It's criminal

    Have you tried cannabis for your pain? There are many different strains that offer different variations of pain relief. I've held off being put on pain meds for quite some time by using it. My husband was on pain pills previously and he's a much happier person now that he's no longer on them. If they are going to take away the pain meds they have know that something MUST replace it.
  • 3 months ago

    RE: It's criminal

    It breaks my heart to read this message, my heart goes out to you. I just recently got diagnosed with Fibro and got put on medication that so far is doing nothing for me. The burning sensations are what, I feel, are really limiting me in being happy. Every time someone goes to touch my arms or for a hug I cringe. I hope we can both find some happiness and relief.