• 8 months ago

    Some bodies fight pain and some bodies don't...

    I have fibromyalgia as well as o ther pain issues and the pain mgmt clinic has me on:

    gabapentin 400mg 7x daily
    oxycodone 5mg 4x daily
    MS Contin 15mg 3x daily

    and I STILL feel the pain thru all that medication. I have decided that my bodies pain blockers must not work, or are very lazy, and my pain making system is in full swing.

    As a male I was raised to believe I shouldn't complain about the pain but it finally just got to a point where I couldn't ignore it anymore. The Pain Mgmt Clinic said that some people's bodies just dont shut off pain or fight it like others...


  • 8 months ago

    RE: Some bodies fight pain and some bodies don't...

    Fibromyalgia is notorious for failing to respond to pain medication. For me personally, the only thing that works now is caffeine. Unfortunately, I am super sensitive to caffeine and one cup in the morning keeps me up at night. So I have to take a sleeping aid to counteract it. Also, I always have to decide if I really need that cup of real coffee, because I am suppose to avoid caffeine to keep from triggering migraines.

    For someone too tired and in too much pain to move, the last thing you want to hear is that you should exercise - but it really does help. I have been super fortunate to be able to join a medically oriented gym, which is really a step up from physical therapy. The trainers really know their medical complications and this gym caters to many people with physical disorders - but it's not cheap!

    If and when you do exercise, keep in mind how easy it is to overdo it. I suggest doing no more than half of what you think you should or could do (maybe as a guy who thinks he shouldn't complain - even 1/4). Gentle, low weight (really low!), and start slow. Five minutes of walking is better than none!

    I whole heartedly recommend trying a very gentle beginners' yoga class. I attended one for people who have Parkinson's disease, and because of me they actually renamed the class to accommodate people with movement disorders including fibro and MS. I have improved enough to graduate to a regular (but gentle) class. Yoga does NOT necessarily require special flexibility - it helps it. Some classes are taught only in chairs. Finding a teacher and class that fits your needs may take some trial and error. Many classes offer a free first class, so you can shop around. Be sure to discuss your fibro with the instructor.

    Also, I suggest finding help in coping mentally. Learning that pain and suffering are not synonymous is a key concept. You can have pain, yet not always suffer horribly from it. I don't want to minimize the challenges we all face, yet it was important for my coping toolbox to accept the pain as a message from my body rather than as an evil foe.

    Sorry I was so long winded. I'm stuck inside during a blizzard and just had real coffee, so I'm a chatter-box!
      • 8 months ago
        Some excellent info there, and I appreciate your sharing it. I try to walk about a block or so daily, and extend it when I can or when the weather cooperates.

        I have an adjustable weight machine in my back room and try to force myself to use it but I hate things that are tedious, and I tend to put working out in the same category of vacuuming, handwashing dishes, etc.

        My dogs are super enthusiastic about walking so that helps. All I have to do is whisper the word "walk" and they are up and at the door. I enjoy their enthusiasm and so we are getting out more and more now that spring is sneaking its way into Minnesota.
      • 8 months ago
        Keeping up with exercise is one of the hardest things to do. Also knowing when to back off is difficult, because knowing the limit, when it is a moving target, is a huge challenge. I have consciously made my health a top priority - financially, time-wise, and commitment-wise. Not easy, and I slip up a lot.