• over 1 year ago

    Is this all fibromyalgia

    I was diagnosed with fibromyalgia maybe 8 yrs ago. The dr tested my tender points and dx came immediately. I was hurting but things were not that bad. I was still moving. I was nearing 60, am fat but still able to move. Was doing farm chores, lifting hay bales, 50# bags of feed and walking a mile 3x a week. Then things started going down hill. There was stiffness and bad muscle pain. My new doctor ( we had changed by then) gave me generic Cymbalta, which pretty much took care of the aching except on real bad days. Well the past 5 years have been crazy with a whole lot of other symptoms that I'mnot sure are associated with fibromyalgia and before I go too far with seeing a specialist I'd like to know if anyone else has these symptoms. I feel like a hypochondriac but my life has been reduced to pretty much staying at home unless its to go to a store with a scooter.
    I have muscle stiffness. If I stand or sit my muscles don't want to move. I have balance problems, I get dizzy, blurred and double vision, intolerance of heat, tingling and numbness in legs and arms, if I stand I get pain in legs and back so bad I want to pass out sometimes. My brain doesn't want to function sometimes and my memory stinks sometimes.
    Even I think all this sounds crazy. Does anyone else have multiple symptoms like this? By the way eyes were checked, they are fine. EMG test was fine.
    Would just appreciate feedback
    Thanks

Responses

  • over 1 year ago

    RE: Is this all fibromyalgia

    My experience with fibro is that it gets progressively worse and severity definitely accelerated when I hit 70. Much of what you describe are symptoms I know well. But there are also other conditions that might be more worrisome (and dangerous) that the fibro. Circulatory issues, diabetes, degenerative disc disease as well as tumors can all present some of the symptoms you describe, such as "I have balance problems, I get dizzy, blurred and double vision, intolerance of heat, tingling and numbness in legs and arms, if I stand I get pain in legs and back so bad I want to pass out sometimes..." Personally I would want to have a thorough medical evaluation to rule out any of the more dangerous conditions -
  • 11 months ago

    RE: Is this all fibromyalgia

    I can tell you that I am only 31 years old and experience many of these same symptoms. Talking about my issues with anyone besides my doctor, or an online forum(such as this..) has become my reality. I experience extreme pain throughout my entire body. Mostly my back, but I realized, that after being diagnosed with this over 3 years ago, this past year I wake up with tingling sensations in my finger tips and my toes. THAT was my scary point in the past year, realizing this was real and not something that goes away. I have been on a variety of medications, some worked and some not. The bad thing is that a lot of the medications are addictive, and sometimes your life becomes dependent on them. The best and only advice I can give to you is FIRST: understanding and receiving a proper diagnosis from your physician. These symptoms DO sound like fibromyalgia and all the research I've done throughout the past 3 years, eating well, moderate stretching and exercising, journaling symptoms, trying new medications, and a regular sleep schedule are the BEST thing to help manage this. Honestly, my heating pad &&&(although addictive)... Tramadol & Gabapentin, have been the main things that keeps me going everyday. I pray you find the help and proper diagnosing and keep your head up! Once you find out for sure, your doctor can help direct you where to go for some relief!
  • 6 months ago

    RE: Is this all fibromyalgia

    You're not alone. I feel the same way. I'm going through the same situation. I thought the same. Hypochondriac, but it's good to know I'm not alone. Hopefully we'll get through this. God willing.
  • 6 months ago

    RE: Is this all fibromyalgia

    I have the muscle stiffness, numbness in legs and arms, if I stand, walk the pain in legs is awful at times. When I was first diagnosed many, many years ago I didn't have as many symptoms as I do now that it has made an ugly reapperance.
  • 5 months ago

    RE: Is this all fibromyalgia

    I was diagnosed in 1986. There was not a lot of information then. As well as the symptoms you describe I have recently found out that my diabetes, thyroid, dry skin etc, weight gain, IBS symptoms, depression and anxiety, sleep disorders could also be attributed to my fibro. My illness could also be genetic. Mu pm had it at a time when no one knew about it, including do doctors. She was advised to take a pill and get a part time job.
  • 5 months ago

    RE: Is this all fibromyalgia

    Back in 2008 when I was first being dx, I found a post somewhere of about 60 co-symptoms (??) and that's when I realized I probably had FM and I wasn't just extra sensitive (although perhaps that's all it is?!?). I had 43 of them. Or maybe there were 43 and I had 2/3 or 60% or?? I forget. But it was a huge thing. All u have described and more. I didn't understand the post-exersional malaise thing until too late though, and over did myself so badly I also developed chronic fatigue syndrome. Luckily I had a great dr in Houston and applied for and received SSDI in 2009 without ever being turned down. But I was very bad at that point - the cfs made things much worse. I had extreme depression and dispaired of ever getting better since only about 15% do.
    In late 2013 I started seeing a Corrective Care chiropractor and experienced some relief. I had seen chiropractors before and got some, but not like I was beginning to see. It was slow but consistent relief. 2 years later I started having energy again. (And I used to have to stop to get my breath just walking from the handicap parking to the store entrances!) I quit using the electric carts at the store. I went to the mall - at Christmas! So I started working out at the gym and got a trainer. After a month I started slowly changing what I ate to eat healthier. I had never done that before. There's a lot more but I credit it all to the corrective care chiropractic. Most essential is the use of a vibration plate after the adjustment for at least 5 min. I could barely do 1 min the first time and actually almost collapsed. But I ended up doing about 10 each time.

    I'm not advertising anyone or selling anything. And I know many people can't afford it. But look into it. They will usually start u out with an exam and initial X-rays for about $50. Maybe less if u can get in on a monthly special or know someone. The ones I have seen (some have moved and started their own practices in other states) are all linked to Maximized Living. They make sure u understand what subluxations are before letting u see your X-rays. Then when u see - it suddenly begins to make sense. And if they really can't help u they will tell u.
    But really, ur body is made to keep itself alive. And most things - yes, even cancer, are ur body's way of staying alive longer. Give ur body the power to heal itself and it will go to work. Catch it early and u have a much better chance.