• 4 months ago

    Fibromyalgia

    Just curious has anyone experienced during a fibro flare up excruciating foot pain and tingling in your toes? I've been dx with fibromyalgia for the past 10 years after my battle with Breast cancer obviously my fibro is becoming more severe at times but this foot issue is new I've been in PAIN past 2wks can barely walk any suggestions and I don't do the meds
    Thanx

Responses

  • 3 months ago

    RE: Fibromyalgia

    Yes, I frequently have severe foot pain. It feels like my feet are on fire and seems to get worse at night - often preventing me from getting to sleep. What I do is soak my feet in cool/cold water for a few minutes and then give myself a foot massage before getting into bed. If is really bad I will use Voltaren Emogel on my feet to help bring down the redness and relieve the pain. I find this usually works. Peppermint essential oils mixed with coconut oil is are also helpful in reducing the pain. You only need a small amount of the peppermint oil for it to be effective.

    Hope this helps
      • 3 months ago
        Thank you I'm willing to try anything natural the pain is extremely unbearable some nights my poor husband has become my personal foot massager Thank God for his patience
  • 3 months ago

    RE: Fibromyalgia

    I have experience every foot symptom, very uncomfortable specially at bedtime! There are days I wake up like if I have twisted a foot!
  • 3 months ago

    RE: Fibromyalgia

    Yes, foot pain is something I've dealt with for some time now, and lately numbness in a couple of toes. I determined that wearing shoes at all times is a must for me, and not just any shoes. They need to provide support and cushion. Even walking barefoot around the house became impossible for me. At home I wear Croc flip flops. The Capri V model is my favorite.
      • 3 months ago
        Omg this is me Exactly I have to change shoes constantly the cushion is definitely needed ....oh my poor family if they only knew the true pain thank you
  • 3 months ago

    RE: Fibromyalgia

    I was diagnosed 17 years ago with Fibro & at the same time, RA. The foot pain is in both feet. I'm not sure which condition is the source of the pain. I've had 3 surgeries on my right foot (Triple Arthrodesis). I am more comfortable without shoes & will walk barefoot anywhere I can get away with it. A few months ago, I was also diagnosed with Diastolic Congestive Heart Failure. My Cardiologist wants me to walk for exercise. That would be good if it weren't for the foot pain! My feet are so hot at night that I keep a moist towel to first wet them & keep a small fan directed right them. That helps a lot. Good luck with any & all suggestions from this site. I am 72 years old.
      • 3 months ago
        Thank you my oncologist is sending me to a Rhuematologist next month I also have severe traumatic osteoarthritis in my left knee I'm wondering could that also be enhancing the foot numbers and pain and yes I do put a fan on mines as well
  • 3 months ago

    RE: Fibromyalgia

    I was diagnosed with fibro in 2005. Since then, I have fallen and broken my tibial plateau (top of the larger lower leg bone, just behind the knee) twice. Each time, at the ER, the constant pain from fibro made it difficult for me to tell the ER doctor exactly where the break was, because everywhere he touched hurt just as much, from the knee to my ankle. TWICE! Later, in 2010, I was diagnosed with peripheral neuropathy, in both legs and feet. The burning and tingling sensations do fluctuate from mildly annoying to so-bad-I-want-to-cry. Honestly, nothing seems to help; I've tried warm baths, cold tubs of water (makes it SO much worse) and different rubs. Even the newer lidocaine rubs don't seem to help. The doctors say that fibro is not in the skin, but the brain misrepresenting the severity of the signals; therefore, nothing topical will help. I use Lyrica to help with this issue, which does make most days tolerable.
      • 3 months ago
        Hi, I was finally diagnosed with Fibromyalgia in 2014, but looking back I was suffering with it for years I just thought I caught every bug from everyone I came in contact with and the doctors had no answers. I have had three cervical disc fusion surgeries and since then my Fibromyalgia has been in a constant flare but still get very severe increased fibro symptoms that put me in bed for several days. I take all the same meds Lyrica, Celebrex, Flexeril, MS Contin, Morphine, etc. the one thing that can calm the burning, aching, stabbing pain is Voltaren Gel. It is a wonder med and works like a charm for me. Not to say it wipes the fibro away but it does help calm that very severe pain that puts you down at bay. It is a RX I get it from my Rheumatologist if you haven't tried yet give it a chance maybe it will help you too. Take Care
      • 2 months ago
        I agree. Fibro IS a nerve issue. The message from our brains tells our body we're hurting. The nerves/brain have been in fight or flight mode for so long that the on/off button broke and it's permanently ON now (the pain signals).
  • 3 months ago

    RE: Fibromyalgia

    I have had fibro for almost 20 years. The guaifenesin protocol (fibromyalgiatreatment.com) saved my life. I don't get foot pain often but Voltaren gel helps almost any pain. I had pain in my piriformis muscle (behind the gluteus maximus) for many years, often agonizing. A visit to a reputable independent physical therapist eliminated that problem in just one visit, which included manipulation and accupuncture. I'd try that for any persistent pain. Wish I'd done it years ago. Good luck!
  • 3 months ago

    RE: Fibromyalgia

    only1me217 Hello, I do have times when my feet hurt terribly just to even touch the floor with them, it feels like they are bruised terribly or had a intense work out. I also have terrible foot and leg cramps, not sure if you get those as well? My feet cramp so bad that I can literally see three of my toes pull up slightly and sideways toward the edge of my foot. It hurts so bad and it will do that a couple times in the row. Another thing that happens to my feet and legs is sometimes when I start to get up from sitting or lying down my feet and lower legs gets pins and needles like they are asleep but I can get up and walk fine and feels like it went away then about minuteor somlater after I have gotten up and walked they go completely asleep like it should have done a minute ago and it is so painful I can't move or do anything and it feels like it last much longer than usual. It's like a delay before going asleep if that makes sense. It gives me a feeling like I caught it before it went to sleep. Does this make sense to you, it's really hard to explain without sounding crazy especially to anyone that doesn't have Fibro. Well anyway I thought I would throw that out there as well. You are not alone with the terrible foot pain, do you also get painful knee pain also? I am curious if others have this issue as well? I have arthritis so maybe it's not Fibro but I feel like my knee pain has intensified I have started using my Voltaren gel on my knees and it does help when they are at their worse and it gives me some relief. I am going to keep some gel next to where I sit and try it next time I start to feel the pins and needles in my feet and legs to see if it helps, it can't hurt. I sound like a sales person but I swear by my Voltaren gel it is about the only thing that eases that burning tightening muscle back pain I get from the back of my neck down to my tailbone. Fibromyalgia touches every part of our bodies nothing is safe, it is so debilitating and isolating. It has been a long journey already it seems so unfair to look at my future knowing it will be with me for all time, I ask why me why you why all of us? Hang in there we are with you.
      • 3 months ago
        Hello Bella omg we must be twinsSo I do get the knee pain because I also have traumatic severe osteoarthritis in my left knee and hip .Since posting the first time about my foot pain I went to see my podiatrist only to learn not only was the fibro acting out in my feet to my surprise I now have arthritis of the left foot and would you believe I have clubbing of the same foot along with neuropathy There I think that's almost everything. I received 3 cortisone injection in my foot I thought I was going to Die!!! But after the pain subsided about 3 hrs later my foot feels much much better but I have to wear a brace now to keep the foot from turning inward It's very unnoticeable but this isn't Drs orders .So the moral to my story is yes the fibro gave me foot pain accompanied by triggering all my other ailments Arthritis I could literally written a Book on that you see when Im in a fibro flare up my left knee ,hip and neck arthritis all go Bananas it's crazy But thank God I can still walk and I'm smiling through the pain
        God bless
      • 3 months ago
        Only1me217, we could be twins, lol. I can't believe the Podiatrist didn't order you something to wear for your foot, I'm not familiar with clubbing but I am sure it's very painful. I get shots in both knees every four months that is not pleasant I could only imagine the pain in your feet with injections. I assume you will have to get those sorta like how I have to do my knees. I have had to get a Rollator to use when I have extra walking to do as my balance is off, back and leg pain, feet & ankle swelling,etc., and if I just need to sit down to take a break or waiting in checkout line. It is my life saver although a pain getting it in and out of my car, thank god my mother is still getting around good she usually drives me to my Dr. Appt. I just don't feel safe driving much or far from my house due to all of the meds I take and I just fall asleep sometimes out of the blue, even standing up talking with my hubby, it's funny but dangerous. I seem to go thru cycles over and over for a week or two at the time for instance:
        :Can't sleep till 2-3am sleep in till 9-10am for awhile
        :Then I can't make it thru the day without a nap in the afternoon 2-5 pm
        Go back to bed 9-10'pm and wake up 8-9 am can't get enough sleep
        : Next I can't get to sleep at all maybe 2-3 hours up & down not restful sleep
        :Next go to bed 11-1 am back up 6-7 am etc, I am sure you know what I mean, it's never continuous or restful sleep cycles. I have had to pull over because I felt like I was going to go to sleep, so I don't drive much and in turn I don't leave my house unless I have a Dr. appt. it's so isolating.
        Anyway
      • 3 months ago
        Only1me217, Sorry hit button accidentally I was going to delete the bulk but it's so hard to describe how things feel or what I am talking about. I am so use to having to describe everything in detail hoping my Dr.'s listen. I have the worst problem with my pain mgmt appts. I saw the dr first time I went then you only see him to sign Rx's and claim the main dr sees you every time I have a visit. The NP is nice but never looks in history I have to state each visit I've had three cervical disc surgery and Fibro, she looks at a old outdated MRI of my lumbar and says it looks great she doesn't know why I am in so much pain and that just makes me fume. I say that I do have osteoarthritis in my spine and she asks who said that, lol. I will say the head dr told me that my first visit and when I had my three spinal injections then she says well everybody has spine arthritis! WOW that kills me! I have to add the Fibro she says we don't treat Fibro and I have to say again the head dr says you do?? It's so sad but I can't get another facility to take me, she just hands me the prescriptions but she should know what's going on with her Pt's. Last visit she knocked down one of my morphines the extended release one because the pharmacy accidentally filled a Benzo, I was taking 30mg she changed it to 15mg and she told me you won't even notice it? Guess what I noticed it seems to wear off sooner! I hate going there but what do you do, always having to say the same things over and over. Do you see a Rheumatologist? I love mine he has really helped me and he listens or explains things in detail. Oh I wanted to ask if you know a good support group online? There is nothing in my area and I would probably miss a meeting I figure if I can find a online group that would work best for me. I tried one a long while ago I signed in and left a message there were so many responses at first then nothing again, not sure maybe I wrote too much like I do on here, but it has been nice trading info with you so thanks for writing me back and again so it's so long, LOL. Take care of you.
  • 2 months ago

    RE: Fibromyalgia

    I'm 32 years old, I've been seeing a podiatrist for foot pain pain for a year now. I injured my ankle twice within 7 years and have to have surgery on my ankle next year. Anyways I just started to see a Rheumatologist because for about a year now I've had severe plantar fasciitis in both feet, both ankles hurt and my knees hurt all day every day. Today I was diagnost with Fibromyalgia and was prescribed Amitriptyline. Has anyone taken this medication and if so what are your thoughts on it?
      • 2 months ago
        Amitryptiline is given for many pain ! It was given to me because migraine, knee pain & numbness in legs! I just find out is good for anxiety
      • 2 months ago
        I used to use it, it worked good for the anxiety . But that was about it.
  • 2 months ago

    RE: Fibromyalgia

    Honestly nothing works, pain medication is just to relieve some pain! Foot pain, tingling sensation , burning sensation also feeling your skin is ripping out is the same every night , nothing changes! I have to deal with Day by day !
  • 2 months ago

    RE: Fibromyalgia

    I often have the bottoms of my feet get tight and feel like they will spasm.
  • 2 months ago

    RE: Fibromyalgia

    I do as well as my Aunt, she uses Ice to numb her feet. I can't do the ice so I use warm cloths or a heating pad.
  • 2 months ago

    RE: Fibromyalgia

    How many others suffer from things as well as Fibromyalgia . Like endometriosis , Chronic Interstitial Cystitis I.C. Bladder disease ,Lupus, Sjrogens,IBS, Vitamin D deficiency, Obstructive Sleep Disorder, Hypothyroid Disease, Degenerative Disk Disease, ADD, and I'm Diagnosed with Bipolar 2 as well as PTSD. I cant be the only one who has all these other problems.
      • 2 months ago
        You are definitely not alone in having multiple conditions. Besides neck injuries and Fibro, I'm diagnosed with Bipolar 2, ADHD, PTSD, anxiety/panic disorder, IBS, TMJD, overwhelming emotions and depression. From all my research, I've read and come to the understanding that the traumas to my body and emotionally to my heart and mind, have caused such damage that my body kind of just said, "STOP. I can't do it anymore. I'm too injured and I can't function anymore like I used to". It's so hard to accept. And monthly I get pain mgmt infusions, where I meet other Fibro patients. Every one I've met has multiple conditions. And all have had some form of injuries before Fibro kicked in. (I've been in more than one car crash, and the last one I went head on into a tree). I've also researched brain injuries from head trauma(s) I believe this has happened to me and my doc agrees. How can that not upset ur mind/body balance... Fibro makes total sense now to me. It sucks. It's chronic it's depressing. But I find some solace in others that experience this. Thank you for sharing. God bless
      • 1 month ago
        I have most of these
  • 2 months ago

    RE: Fibromyalgia

    I was diagnosed withFibro in 2009, and the pain & stiffness continues to get worse .Most recently I have been getting pain in my feet. Sometimes so bad I struggle to walk. My doctor took x-rays which showed nothing wrong. So I believe it's another symptom of Fibro. Sorry I could not be more helpful, and give you a better answer. I work full time, and it is becoming more difficult each week. Which is why I will be taking early retirement at 62 in February 2018, and just work part time. God Bless and Keep The Faith
  • 2 months ago

    RE: Fibromyalgia

    Hi. Have Fibro and neck injuries. My feet drive me nuts quite often. When I have to rest, I lay down almost always on my side. Either way I lay, one foot is laying flat on the bed or couch and it hurts. Sometimes it's just so sensitive that I can't get to sleep for awhile, or at all, because my feet are hurting. My pain mgmt doc gave me a prescription for Lidocaine patches. I use these in different areas as needed. And lately I've often been putting them on the outer sides of my feet then light socks on and that really helps!! I hope my reply is somewhat helpful to u. God bless you. This condition is horrible to live with
  • 2 months ago

    RE: Fibromyalgia

    I freeze a plastic water bottle and then roll it over the bottom of my foot to ice it. It really seems to help!