• over 1 year ago

    Esophagus Issues

    I am a 26 yr. old female. The last time I was able to eat solid food, I had to immediately throw it up because of pressure in my chest and the feeling that it was stuck. Fast forward 8 weeks and I have had an Upper GI scope that showed signs of GERD, a swallow study that came back fine, a esophageal motility study (or manometry) that showed an 'undiagnosed obstruction', and a CT scan that the dr says did not show anything that would be causing my symptoms. Has anyone else dealt with this or know what the next step is? I'm at a loss.

Responses

  • over 1 year ago

    RE: Esophagus Issues

    I'm wondering if you have had any more improvement in your condition. I have been having trouble swallowing and had upper gi scope and swallow study. Swallow was normal and scope showed week muscles or peristalsis i guess. Suggested Manometry next. But the Dr. didn't seem to think there was much to do other than change habits. I too have had GERD for many many years on and off - and i can't help think that its related. But wanted to see how you were making out?
  • over 1 year ago

    RE: Esophagus Issues

    I'm wondering if you have had any more improvement in your condition. I have been having trouble swallowing and had upper gi scope and swallow study. Swallow was normal and scope showed week muscles or peristalsis i guess. Suggested Manometry next. But the Dr. didn't seem to think there was much to do other than change habits. I too have had GERD for many many years on and off - and i can't help think that its related. But wanted to see how you were making out?
      • over 1 year ago
        I haven't had improvement but I am slowly getting more answers! I would really push to have a manometry done if I were you. It's really not normal to have weaken muscles! I had an upper scope with botox injections that did not work, so my GI ordered another esophageal manometry that showed that my striated muscle segment was not working. This typically happens to people with neuromuscular disorders so I was sent to a Neurologist. I had a brain MRI that I just received results on and I have a lesion...we aren't sure what it is or what has caused it, but it could be MS, cancer, and a lot of other things. Push, push, push for that manometry. It could be the next step in getting a diagnosis.
  • over 1 year ago
  • over 1 year ago

    RE: Esophagus Issues

    I have had trouble swallowing for many years.
    I’ve had the “Manometry” test when first diagnosed, then with subsequent testing, had an “Esophageal Manometry”. Surgery where the surgeon makes an incision in the muscle of the “Flap” that prevents food from returning from the stomach up thru the esophagus.
    Fast forward to earlier this year, I got fed up with the continued swallowing problems, son I revisited a Gastroenterologist. Had esophagus scoped out , at the same time, Dr. performed a procedure where a balloon is inserted thru a tube, inflated to “stretch out the esophagus.
    This worked only, for a short time, but still a little better at best.
    There’s only 3 ways our condition can be treated.
    1) A Botulism injection ever few months to relax the esophagus. However, this is usually performed on Senior citizens.
    2) Surgery, as I just described above.
    3). Have a balloon inserted thru a tube to dialate the esophagus.
    By the way the “Disease” we have is called “Accalasia”.
    Talk to your Dr about.
    The esophagus doesn’t form the tube shape, but a “bird beak” shape, henceforth, the difficulty swallowing
      • over 1 year ago
        My Gastro doctor thought that I had Achalasia, but after the botox injections didn't work I had a second Esophageal Manometry and the results (striated muscle issues) led them to think that I had a Neuromuscular disorder, I've had an MRI of brain that showed a lesion in the part that controls my swallowing along with a number of other things...so now we are trying to figure out what caused the lesion. Have you and your doctor talked about the POEM surgery? It hasn't been performed in the United States for long but I heard that it does miracles for people diagnosed with Achalasia!
      • 6 days ago
        Can you tell me if certain food can set it off? I noticed whenever I eat red meat, it will set off my swallowing symptoms.
  • over 1 year ago

    RE: Esophagus Issues

    Sounds a lot like Achalasia. Have that condition for over 40 years already. First procedure was a balloon dilation and some years later a second one. It helps but didn't last. Finally had a myotomy performed. (laparoscopic). Great result, maybe once a month I might have some swallowing problems.
  • over 1 year ago

    RE: Esophagus Issues

    With my talks with the Gastroenterologist, this “swallowing disease “ is something people are born with, and progressively gets worse over time.
    When I was first diagnosed, and my recent visit with the Dr., both Drs asked if I have visited South America.
    Apparently, this “swallowing disease” is prevalent in South America , as it transmitted via a parasite.
    Nevertheless, the swallowing issue is exasperated by neurological dis function of the Esophagus and Upper GI.