• 2 months ago

    2nd Opinion

    My recent prostate biopsy came back positive for cancer, on the Gleason scale 3+3=6. My doctor, based on my good health and age (71), recommended active surveillance. I’m looking for a 2nd opinion from someone that’s been there and done that who might recommend something different.
    Thank you,

Responses

  • 1 month ago

    RE: 2nd Opinion

    I had surgery 2 weeks ago. I'm your age. I've had AFIB for 10+ years and diabetes pills for about 4 and insulin for about 3 months. So, about watching: I'd want to be retested no less than every 6 months. In the meantime, determine who you'd want to do surgery and where so that you don't waste time if the numbers change. I did the watching and when my numbers moved up, It took me a while to decide who / where I was going to have surgery. Had I been better prepared and better organized, I might not have lost the nerves that I did--there's no certainty. I caused about 2 months of delay in surgery which was not helpful. (I left my city and went to SLC / Huntsman Center for a 2nd opinion from both a radiation oncologist and a surgeon who agreed treatment was needed ASAP. I just could not make the logistics work to have surgery there, but I had waited until after I made that trip and decision to select a local doctor and book consultation with him (nearly a month out,) followed by month-out surgery scheduling. I should have had the local appointment booked for just after I went to SLC--I could have cxl'd it if I could have made SLC work. I liked my original Urologist but he was forced to join a different medical practice when his very respected one was closed by corp HQ. I felt like he'd not had much surgical experience in the 6 mo before I needed surgery, so I shopped for 2nd opinion and a doctor to do the surgery.
  • 7 days ago

    RE: 2nd Opinion

    I would not presume to second guess your urologist. That said, after recently being confronted with the same question at the same age, I hope that sharing my experience will be helpful.

    My Gleason ( https://en.wikipedia.org/wiki/Gleason_grading_system) .

    The last of my 28 radiation treatments was on 08Jan19. My first follow-up was on 12Apr19. My PSA was 0.01, down from 4.70 back on 26Jul18; next follow-up scheduled for Oct19. My lovely wife and I consider ourselves very blessed to have worked with both the urology and radiation oncology staffs that treated me. Aside from a temporary increase in urinary frequency and occasional hot flashes due to the Lupron, I’ve been able to enjoy a normal life throughout my treatment and recovery.

    Again, this is in no way intended to supplant your urologist’s judgment and advise.
      • 7 days ago
        Added due to truncation of previous entry.

        My Gleason ( https://en.wikipedia.org/wiki/Gleason_grading_system) .
      • 7 days ago
        Added due to second truncation of previous entry.

        score came in at 4+3=7 in three areas and 3+4=7 in one. This result placed me in the “upper half of the middle third of the severity scale” as my oncologist explained it. He advised that we proceed with treatment. An MRI scan revealed that the cancer had not yet metastasized beyond my prostate. Contrary to my first inclination, he further advised that, at my age, beam radiation treatment would be the best choice. This was accompanied by two 3-month doses of Lupron ( https://en.wikipedia.org/wiki/Leuprorelin) .