• 2 months ago

    Deciding not to get radiation after Breast Cancer

    Hello - My decision after being diagnosed with Breast Cancer. Details below. I was informed after my double mastectomy that the tumor they removed was non cancerous. Three nodes were tested morning of surgery (dye inserted) into nodes that surronded the nipple and all came back negative for cancer. Initial Biopsy of tumor and lymph node showed I had a cancerous tumor in my right breast and lymph node test same day came back negative for Cancer. For me it seems that Chemo really did its job. I was ultimately recommended to have 28 round of radiation. I did my research, a lot of soul searching and met with the radiologist who ultimately recommended radiation. I could not wrap my head around having radiation with the results I have. I am Cancer Free. It is hard to take your own health into your own hands when we know the experts and professionals are out there. But maybe my situation is unique? Or maybe my wonderful outcome is not the "norm" right now and more studies have to be done. But If I get cancer again one day, not one professional will be able to tell me if it is from getting radiation or not getting radiation. Would love to hear what others think and really I just wanted to share my journey. Facts from Radiologist are below.

    ASSESSMENT AND PLAN: 43 year old female with infiltrating ductal carcinoma of the Right breast: UOQ, clinical stage T2N1, ER-weakly positive (5%), PR-negative and Her2/neu not amplified, grade III, s/p neoadjuvant chemotherapy (AC-->T) followed by modified radical mastectomy and sentinel lymph node biopsy, with a pathologic complete response ypT0N0. US guided biopsy of her axillary node was negative, but given her clinical exam by (DR. General Surgeon) and MRI findings that were thought to be discordant with the biopsy results, I am operating under the assumption that she had node positive disease up front. Though a pathologic complete response is an excellent prognostic sign and omitting radiotherapy in this setting is currently under investigation, it is still considered the standard of care until results of NSABP B51 are available. As such, I have recommended course of radiation therapy to the chest wall and regional lymphatics. The rationale, risks, benefits, alternatives, and personnel of radiotherapy were described in detail. All questions were answered to the patient's satisfaction. We will schedule simulation.

Responses

  • 1 month ago

    RE: Deciding not to get radiation after Breast Cancer

    Standard of care, protocol, and other terms used by our team of doctors is to let us know how they intend to "keep the cancer from coming back".
    I, too am cancer free much like you. My journey has been similar with the exception that my cancer is triple negative. The oncologist has put the fear of God in me with ( - - - ). The "bad" stuff and they want to throw EVERYTHING they can at it. I was told post surgery that I had no cancer in my breast yet I'm on the strongest chemo they have to offer. Then they want me to do radiation as well!
    Good for you for taking control of your own body and treatment!!! Your bravery is inspiring! You certainly give me cause for pause. Blessings to you and a prayer that you are at peace with your decision!