• 10 months ago

    Epilepsy

    I am a 27 year old female and I've had epilepsy since I was 10-11 years old.

    I usually had it 2-3 times a year in a night when I was a child. Most seizures were 2-3 mins in duration.

    I took Depakin for a few year. After remission, I stopped taking it.

    I now suffer from epilepsy every few years. Specifically, age 17,20,23, and now this year at 27.

    My questions:

    1) I seem to get epilepsy when I'm stressed and tired. Is this a coincidence or not?

    2) Can I live without taking Depakine?

    3) Can I die if nobody is around me during a seizure?

    4) Can I take Urbanyl when I feel tired or stressed or have a headache to stop any potential seizure?

Responses

  • 7 months ago

    RE: Epilepsy

    I was told sleep deprivation can lower your seizure threshold, meaning they can happen easier. So making sure you are getting a good nights rest is essential. With the stress, it may cause your sleep to be worse, reverting to what I just said. People have seizures all the time when they are alone. But it's the bad ones when people foam or vomit that could potentially complicate things. I've never heard of a seizure medication being used 'as needed'. Some have to work up to therapeutic levels in your body. So it's best to take the prescriptions given by your doctor or consult with your concerns.
  • 7 months ago

    RE: Epilepsy

    I had the same issue, Periodic episodes of convulsive seizures since childhood. Finally they did an in patient evaluation and sleep study. They found that I actually had daily non-convulsive seizures. I would suggest talking to your neurologist about getting more extensive testing. The drug that I use is Kepra. I have started using CBD oil. The CBD oil enabled me to lower the dose of the Kepra, my quality of life has vastly improved.