• 2 months ago

    Chronic Pain

    I too am one of a million people suffering from chronic pain. There has been much in the media about the opiate crisis. Since I am under a pain management doctor's care and take opiates for chronic pain, I am very concerned. The media states how many people are dying each day from opiate overdoses, but I never hear about how many people, under a pain management doctor's care are dying from overdoses. I take my meds as prescribed and I take them for my pain, not to get high. I have been taking opiates for the past 11 years.

    I live in Florida which has some of the strictest laws covering opiate prescriptions. For a time after restrictions were put in place, finding a pharmacy to fill your Rx was difficult. Many pharmacies were afraid to fill narcotics or the pharmacy would be out of the meds due to DEA allowing pharmacies to carry only a certain amount of the drugs.

    There are many judgmental people, both in and out of the medical community believing chronic pain suffers do not need pain medication. I have had physical therapy, TENS unit, steroid injections, talk therapy, support groups, every over the counter pain aid on the market and finally a 12 hour reconstructive surgery on my cervical and thoracic spine. The surgery failed and pain continued.

    Pain medications help me tremendously, but they are not a cure all, I still have pain. I am thankful for my life, and pain medications help me live a good life. Without pain meds, I don't know how I could endure agonizing pain day after day without any relief.

Responses

  • 2 months ago

    RE: Chronic Pain

    So true. When I first was prescribed opiate type medication I faught taking them, felt so guilty and had to overcome my prejudices regarding these kinds of drugs. I finally understood these medications were really my friend that helped me have a better life! I am sad that the media only reports on people that misuse these medications and don't take a in-depth look at how these medications truly mean having a somewhat kind of normal life for those who have to fight severe chronic pain every day! The influences that abound around these issues are so discouraging as many have nothing to do with the well being of the people who so need their help. Thank you for your encouraging words they are a comfort. Best of luck to us all.
  • 2 months ago

    RE: Chronic Pain

    it is very funny that in my support group most of the members state that they take pain pills for the high as they do not do anything for the pain these are the ones oding also too many take that one extra and die the problem is most will end up abusing the meds those who say they don't are lairs
      • 1 month ago
        I'd suggest you consider finding a different support group. It sounds like your not getting very much support. As I too have Chronic Pain I know how important it can be to have support. If someone who has Chronic Pain takes pain medicine and gets "HIGH" they are on too High a dose. Maybe you could encourage them to discuss it with their doctor. I agree with you saying that these are the patients that are at risk of taking too much. That is another reason they need to discuss their medication problems with their doctors. If we all try what we can to help hopefully it will make it better for those of us who truly need the pain medicines. It may not help at all but we won't know until we try.
  • 2 months ago

    RE: Chronic Pain

    Anonymous....I too have been on opiates for 10 years. I've been through PT, Epidural Injections, Ablations, etc., etc. I am seriously afraid they will take the medications away that allow me to live some sort of life. I use my medications as prescribed and don't abuse them yet still have pain and horrible spasms. I would hate to find out how badly I would hurt without the medication. Don't know who some of these "doctors" who are advocating weaning us all off opiates in favor of therapy, chiropractors, etc. but they've obviously never been in pain for long. And they aren't looking at the history of those of us under a pain management doctors' care. I live in FL, as well, and have been through the problem getting my prescriptions filled, and even my pain doctor doesn't want to go up in dosage when I'm at a relatively low dose to begin with. I was an RN for nearly 30 years and my goal has always been to help people. At this point, and I know this sounds cold, but I don't really care if these people overdose. Our society has become one of no personal responsibility. You can't save everyone, especially if they don't want to be saved. These people made a choice to abuse these drugs and those of us who need them suffer because they want to get high. And where are they getting all the opiates? I can barely get my legitimate prescription filled.
      • 2 months ago
        True that! I agree with all you have written and I am grateful you posted your thoughts. Thank you and my best wishes are with you.
      • 1 month ago
        I too am RN and my meds were cut significantly and I was ok with the first reduction, he and I discussed it but the 2nd one was a surprise and I now cannot function or take care of kids. I'm hoping his knowing I'm honest and with my severe health history and multiple surgeries, new MRI, he will at least put me back to what the first reduction was. It was the way he did it that bothered me, already reduced me and I was not included or told about the 2nd. Being a nurse destroys ur body ... the lifting, walking MILES on concrete each shift which always turns into 13 hrs or more. My body just keeps destroyitself and I'm not even working now! The medical community I once was a member of now I feel differently. I'm praying to God my doctor has compassion and gives my life back. I understand and agreed I needed first reduction but it's not right to "spring it" on me when i plan my day and base my activities on when i can get relief. It also broke a trust, I need that with my doctors. Being a nurse maybe, but I want a good rapport and mutual trust. I've been on same dose for 5-6 years, only increased twice for short periods of time due to surgery, but always back to base dose. Now I feel like a piece of furniture, running out of meds early in day and scared to do anything that will make me hurt. It's affecting my marriage and my relationship with kids because I don't/won't risk the pain. But the drug addicts r not affected. They still sell/buy, and the overdoses r heroin and other illegal substances, not honest people WITH a Rx. It's we who r honest and NEED it who r affected.
  • 2 months ago

    RE: Chronic Pain

    No one has stated that there is a need for pain med. The way things are now is a direct result of over prescribing . One of my coworkers sprained her ankle over the weekend. The ER doc wrote a script for a 100 10 mg oxycodone for her. Guess what she is stoned out of her gord and is selling the $10 a hit!! She went to Bueamount in mi
      • 2 months ago
        "No one has stated that there is a need for pain med."
        You can't serious about that if you've been reading what people are saying.
        Like many others, I cannot function through a day without my hydromorphone. I would have to give up and go back to bed, or sit in a chair, or something. No work, no socializing. Nothing.
        For me, taking opioid medication is like walking around with a loaded gun. That's potentially very dangerous, and is somethig I would prefer not to do. But it is necessary, because nothing else helps.
        I've received word this week that my hip surgery is scheduled for early September. After that, I expect to be finished with opioids. Fortunately.
        I wish other people could get off their opioids as easily.
      • 2 months ago
        sorry that is to read there is a need for
  • 2 months ago

    RE: Chronic Pain

    No one has stated that there is a need for pain med. The way things are now is a direct result of over prescribing . One of my coworkers sprained her ankle over the weekend. The ER doc wrote a script for a 100 10 mg oxycodone for her. Guess what she is stoned out of her gord and is selling the $10 a hit!! She went to Bueamount in mi
  • 2 months ago

    RE: Chronic Pain

    Hello.

    I have managed moderate to severe chronic pain for over 40 years. Click on my user name to read my profile story.

    Posts like yours make me wish I was not allergic to all narcotics as well as glad that I am. This has become such a hot topic for those of use who deal with chronic pain every moment of or lives.

    I have to rely on muscle relaxers, enteric coated aspirin, a great lift recliner chair and regular chiropractic adjustments. I have had steroid shots and rhizotimies (aka abations) to all areas of my spine. The procedures have worked but only for a few months. With the rhizotomies the nerves do grow back and the pain is worse for a while. Surgery is not an option for me as my spinal problems are too complex and serious.

    Our son has a friend with chronic pain due to spine problems. He was under a pain manager's care and the doctor cut off his opiates for some reason. He turned to heroine and is now fighting this addiction.

    I pray for all of us managing (or trying to manage) chronic pain daily. Perhaps someday a permanent, non-addictive and safe solution will be found. I am hoping that one day they will perfect a spine transplant procedure. LOL :D

    Blessings,

    -Dave
      • 2 months ago
        Good to hear from you, . How are things?
      • 2 months ago
        Things are, well, OK. My chronic pain levels are way up due to a very wet spring and now summer here in Western New York. Doing all I can to help the pain but still struggling. Looks like next week will be drier so that may help.
      • 2 months ago
        With all the nerves, vertebrae involved, a spine transplant is probably generations away.
  • RE: Chronic Pain

    Good to see a post from you Dave! Like Dave I have dealt with pain issues since my teens, started opioid therapy then too. Have had all the procedures done. None even gave even a month of relief. Was discussing with my PCP about these changes. She is one of the doctors protesting these changes. She say the abuse does not start with the doctor it starts with the patient. When the patient takes that extra pill takes one just to get high (we all know the danger of these meds so ignorance is not an excuse). This person is the problem and is in need of an intervention before the drug use cost the patient everything
  • 2 months ago

    RE: Chronic Pain

    I agree with you wholeheartedly. I also suffer from chronic pain. In order for me to walk any distance. I take Oxycodone, Tramadol and an Acetaminophen. I have to time myself when to take them. It takes about an hour to get in your system. I then only have 5-6 hours to walk around with a cane. I have Septic Arthritis. 3 surgeries on my left knee.
    Whenever I see a news item pertaining to opiates. Either TV, magazines or newspapers. My blood pressure goes up!! It's like you said. You only hear everybody is addicted. Never when someone HAS to take opiates. For chronic pain. Thankfully I'm a veteran. I get all of my prescriptions thru the VA. Refilling the Tramadol is no problem. Since its an artificial opiate that works like the real thing. However, when I see my doctor every 90 days. She knows my stance on the opiates. I even wear my Oxycodone t shirt to all of my appointments!!! She laughed when I first wore it. But it gets my point across. Plus I wear it out in public. I'll get a new prescription for Oxycodone. I get 60 tablets 5 mgs for a month. I only take the Oxycodone and or Tramadol when necessary. The VA really keeps tabs on you. In order to get the next month's Oxycodone. I have to send a secure message to my doctor. To get a new prescription of another 60 tablets. If I send the request to early. Say 25 days. The VA won't have a refill ready to pick up until the 30 days have gone by. If you can't pick up the new prescription. They will send the bottle by a UPS Registered envelope. You HAVE to sign for it. Plus be over 18 years old.
    The only problems I hear about the VA. Are pharmacy personal stealing the opiates. That's an internal problem. That they have to fix. The VA Outpatient Clinic I go to. Has excellent service. I've never had any major problems for any of my healthcare. Only 1 very minor problem. In 15 years. That's a pretty good record. I always rate my visits with 5 stars. Out of 5.
    So I strongly agree with your post. I wish the media would print all of the positive reports about taking opiates. But it will never happen. It doesn't make spectacular reports like that. The media is only out for $$$$$. Or they print fake news. Just look at what's going on now. Even some in congress just act like children. With all of these special committees. Wasting my tax dollars. Crying because their donkey party lost the election. The need to do what they were elected for. Worry about Obamacare, pass the new 2018 budget and other Federal Government problems. Like North Korea!!!! You got me started on another problem. But enough of that. I support you 100% on the Opiates for chronic pain. Have a great day. Keep posting!!!
      • 2 months ago
        Your meds started to kick in and you sounded garbled. Like a Republican whining after Obama saved and fixed the country, you want more pain meds. Opiates have killed quite a few people in the last few years. Are your rumors of VA theft valid or are a few whiners complaining? Don't like those that blame a problem on rumor. Nancy said" just say no" to drugs.
      • 2 months ago
        It doesn't matter who you voted for. The main thing is. Congress is using every trick in the book. To defame the President. All of the special committees are wasting time. And my taxpayer money. As I said before. The donkey party cannot accept their loss in the election. They will use any means to defame the President. Who is trying to make the United State #1.
        SORRY, I WASN'T ON MEDS WHEN I WROTE THAT!!! If your smart enough to watch a wide variety of news. You will have heard that the VA does have an internal problem with some of their employees. Most news is liberal. Like CNN and MSNBC. There are other news channels to watch. Plus the same goes for newspapers. The New York Times and the Washington Post are to the left. But there are other news sources that report the truth. Not take news to create an uproar.
        It's a no brained about employee theft. It happens all over. Or have lived a sheltered life??
        Getting back to Opioids. My doctor started me on 5mgs of Oxycodone. Also 100 mgs of Tramadol. After using that combination for 3 months. I went back and told him I need something stronger for my disabled left knee. Instead of upping the dosage of Oxycodone. He upped the Tramadol dosage to 200mgs.
        Now that works for me. He was concerned about pain management. Tramadol is a synthetic opioid that works like Oxycodone. But doesn't have a great of chance to become addicted to it. Evidently there are some good doctors that know how to deal with pain management. I'm glad I had him. He retired after 30 years at the VA. The Doctor I have now follows the same guidelines. I could ask her to increase my pain killers if necessary. I wonder how she would handle that. Using my past VA medical records. And thru her training to become a doctor. She knows me for the past 2 years. I would be happy with whatever result that she comes up with. Remember the doctor is always RIGHT!!
      • 2 months ago
        Do a knee replacement, probably would help but don't blame us Dems for the idiot in the WH. I've voted in every election since '66. When my guy loses, we move on and with Obama, Clinton, Carter I've been pretty happy. Being self employed the only bad time was "what day is it" Reagan.
      • 2 months ago
        Ziggy, you're crazy if you think the Repubs. have any care for anybody but themselves. As a life long Dem. Thank your Dems for the VA, by the way.
      • 2 months ago
        With opiates it's, "if one is good, two is better." Aspirin and ice are better.
      • 1 month ago
        There are many chronic pains that ice and aspirin will not help. Yes abuse is a problem but I have to agree it is a problem with the abuser who should be treated for their illnesses and not made into a problem for the person who needs the medication to have any quality of life.
      • 1 month ago
        Don't like Obama? Ain't seen nothing yet when you see Deadbeat Trump in action, or rather no action.
      • 1 month ago
        Obviously you have not suffered severe enough constant daily pain. It's not like what u said for pain meds if your really suffering plus undertreated pain on a daily basis can cause worse problems like high blood pressure and stress response that can lead to autoimmune disease. I'm sick of suffering when I shouldn't have to because of someone else's judgmental opinions or god complex. The people that die would find something else to overdose on, undertreated pain also causes depression and anxiety and deaths because if the depression but they blame that on pills too. I barley have a life on what I'm allowed to take and I'll have none if they reduce anything. I've had 3 surgeries in 1 1/2 years where they didn't find much of a reason till they got inside, then guess what, oh I did have a reAson to be in that much pain after all!! imagine having doctors blame pain meds on what gall stones and herniated discs were causing. That was just because mri and cat scans doesn't see everything folks. Don't give up!
  • 2 months ago

    RE: Chronic Pain

    Here we go AGAIN, with the pain=addiction theory! Been suffering from unrelenting CNS pain for close to 20 yrs. Personally, most tragedies I've seen ie: addiction, od's, etc.....result from docs UNDER prescribing! It sends desperate folks straight to the streets, drug dens, to buy illicit drugs, because their doctors OR pharmacy, can't/won't prescribe a legal alternative. FAR more deaths from street drugs than the RX types. I for one, refuse to accept a label placed on me by an unsympathetic society! Walk a mile in my shoes.........
      • 2 months ago
        How does one get this Chronic pain? I'm an old guy and I've had a lot of pain at times but as I healed the pain went away. Had my back run over by a 60s Pontiac Bonneville, a couple concussions, etc. Ice provides a lot of relief but then again it's not a fancy opiod.
      • 2 months ago
        I think doctors prefer to prescribe the smallest amount needed and adjust from there than to start out with a larger dose and then lower it
      • 2 months ago
        behrhorn:

        You posted "How does one get this Chronic pain? I'm an old guy and I've had a lot of pain at times but as I healed the pain went away. Had my back run over by a 60s Pontiac Bonneville, a couple concussions, etc. Ice provides a lot of relief but then again it's not a fancy opiod."

        You are very fortunate to have healed from these injuries, let alone still be alive. Most people would never be the same again and require help with the resulting chronic pain - pain that is with us every moment of every day to various degrees. Some of us have genetic birth defects that have resulted in chronic pain, while others have had debilitating injuries. Pain is subjective and can disable even the strongest person.
      • 2 months ago
        I've been lucky. Since the 60s I did a combination of weightlifting, bodysurfing, outrigger canoe racing, running, swimming, etc on a regular basis and I never had pain issues until a few years ago when I pinched a nerve in my 3rd vertebrae. Doesn't hurt but my right bicep feels weaker.
      • 2 months ago
        If a patient has a problem he should go back to the doctor and explain his problem not run to a drug den. Doctors are aware that certain solutions may not work.
      • 2 months ago
        u tell em dave
      • 2 months ago
        that is the correct way what if you are allergic a lager dose would kill most people do not have a tolerence that is why doctors often give vacations form opioids so your tolerence gets reset lager doses have also been shown to increase pain, cause irreversible organ damage do not get be wrong they have their place I take them have most of my life the problem is too many think the "high" is linked to the pain killing effect they are not the same thing a lot of ods occur because the patient figures they are smarter than their doctors
      • 2 months ago
        After reading all these posts the best solution is visualization in treating pain. I've done it for years and if needed a couple aspirin will help. Visualize a bird flying away with a bag full of pain. As the bird starts to disappear, the pain disappears. Only need a strong mind to visualize.
      • 2 months ago
        Anonymously, that post was me not Dave.
      • 1 month ago
        I totally agree with you. I have fibromyalgia, rheumatoid arthritis and degenerative disc disease in my spine. I've gotten a right knee replacement and need the left one done now. I get Tramadol and I'm lucky to get that. These doctors don't have a clue of what it is to have chronic pain. I've never abused my meds. I need Tramadol to be able to walk and move around. I'm still in pain but it takes the edge off. This b.s. about the opiate epidemic....there will always be people that will abuse drugs and die. It happens. Not everyone abuses their meds. Why should the chronic pain sufferers that need these meds to function be punished because a few abuse the meds and die?
  • 2 months ago

    RE: Chronic Pain

    [deleted]
      • 2 months ago
        Don't judge others like you judge yourself. Americans aren't perfect but to say Americans don't care is ignorant.
      • 2 months ago
        Your views on chronic pain are also ignorant. What works for you will not work for everyone.
      • 2 months ago
        Did I say it'll work for everybody? NO. I visualize which requires a strong mind and keep myself in shape with a good diet and a comprehensive workout routine which over the years included jumping rope, weightlifting, running, bodysurfing(#1) yoga, etc. Richard Simmons had deal a meal, I have deal a workout. I never said it would work for everybody but it's worth a try. Better yet take a lot of pain pills and wallow in sorrow.
      • 2 months ago
        I love these people who post as Anonymous. Are they scared, embarrassed, what? WTF!!
      • 2 months ago
        In what country do you live? Hi behorn, sorry this question was not directed to you! Tried to sent to anonymous re: everybody hates Americans etc. Kind of you to answer question when so far off your comments!!
      • 2 months ago
        peonygirl1, I live in the United States and am a healthy 71. Don't know why my answer is so far from your question.
      • 2 months ago
        I've had a lot of experience in participating and coaching explosive and endurance sports for the last 50 years. If you want to do well it takes effort that many are unable to do.
      • 2 months ago
        i have friends coworkers family that also post here i do not need them knowing what i am taking i have been harassed by them in the past those that b the loudest about it are the first to beg me for a pain pill do not need that bs again
      • 2 months ago
        you get the most drugs you die the most USA is the bully of the world try to force their way on everyone
  • 2 months ago

    RE: Chronic Pain

    Hi, I am so glad you posted these comments, they are so true. If only all of this legislation was about helping people living with disabiling pain instead of money based issues and reelection concerns etc. How sad for all.
  • RE: Chronic Pain

    I'm in pain constantly. Was in a bad auto accident years ago and still have back and neck problems. Now my neck is full of arthritis, I get headaches almost everyday. Aspirin, Tylenol, lidocaine patches and Bio freeze is all my Dr. allows. I fell and dislocated my shoulder n fell again on a cracked sidewalk n both shoulders in pain. Knee pain, lower back pain. Can't do my daily walks my knees are bad. I wish I could get on some medicine to ease the pain. Had cortisone shots in my forearms 25 years ago, I mentioned it to my new Dr and she won't refer me to a Dr. I'm tired of being ignored. I need relief.
      • 2 months ago
        Hi animalover...., So sorry you suffer so. If you ask your Dr to refer you to a pain management group will she do that for you? Her refusal to help you you seems illegal!? Have you asked your Dr why she won't give you a referral? Be persistent, you deserve to be given the best help that might be available to you!! Best wishes are coming your way.
      • 2 months ago
        Find a new Dr. Demand a referral The Doctor can't ignore your pain.
  • 2 months ago

    RE: Chronic Pain

    Most OD's are on prescription medication prescribed by a doctor of their's It is a said fact that most are taking legally obtained pain medication are abusing/or have abused their medication. The one more pill, if 1 is good 3 or 4 are much better. Don't get mad at me this is the behavior I see every week at my support group, hell I have done it myself. How many kill their script in 1, 2, or 3 weeks early only to spend the remaining time in withdrawal. How many times have you drank alcohol, smoked weed to make the effects stronger. Be honest most of us have that is why the deaths are so high we are to blame ourselves We need to police ourselves see that ones starting to abuse get the help that they need. This BS the doctors just don't understand my pain has to stop until we have done a good & truthful examination of our self!
  • 2 months ago

    RE: Chronic Pain

    I am with you. My doctor said ones that died wanted to overdose. It I feel is made up to look like the gov. is doing things for us. I have lots of friends that are in pain and the Dr. will give the NOTHING. Also we are a aging group that is why I think a lot more people are on them Keep the government out of my health care. I have to take a drug test to prove to the gov. that I am taking the drugs funny
  • 1 month ago

    RE: Chronic Pain

    I've been taking hydrocodone 60md for 20 years, and I could be active. NOW my pm has given me Bup30/naloxone7.5 and getting no relief at all!
      • 1 month ago
        Buprenorphine is for acute pain and chronic pain. Naloxone is used to block the effects of opiods. It's mainly used for opiate overdoses. When combined with the Buprenorphine. It decrease the risks of misuse. Evidently your PM thinks you might have a problem with taking Opioids. Plus addiction. For your past 20 years.