• 3 months ago

    Scared I may have MS

    Good evening. I am little scared and could use your thoughts. A little over three weeks ago, my right leg went numb below the knee and I started to get pins and needles in the feet and cramps in the calf. I also had a dull pain behind my left eye and very slight shaking (kind of like my whole body was on vibrate but barely noticeable to me). The pins and needles, numbness and cramps started to migrate to the left feet and calves over the next two days. The afternoon I had a really sharp pain on the right side of my neck of 30 minutes (glosseal neuralgia?) Then it went away. This happened at the same time the following two days for exactly the same time period. I haven't had that since. Then I started to get a little tingling and pins and needles in my hands and twitching in my legs and extreme FATIGUE. It felt like my legs couldn't support me. I also started to get pin pr!ck sensations all over my body but mostly below the waist. Over a few days, the twitching got a little and pin pricks got worse and my right leg and arm felt like it was sunburned, which it wasn't. The sun burn lasted a day . A couple of days later, still having tingling, cramping, twitching, and pin pricks, my right side felt like it was literally on fire. That lasted a day. About a week has past and it felt like my symptoms were very gradually decreasing and them wammmo! Yesterday morning I had severe pain on my left scapula whenever I turn or bend my head left or lift something with my right arm. My buddy did a little acupuncture and the pain went away. I also started getting electric shock sensations on my head all over but mostly on the sides and behind my ears. Today, I had very sharp pains below my calf to my heel that lasted for a second and continued for several hours, intermittently. This is really starting to freak me out. But other than urinary and bowel issues, I pretty much have every ms symptom. Can you get all of these over a 3 week period never having them before? I should point out I am a mid 40s male and in good shape. I met with my pcp and had a bunch of blood tests to include Lyme disease, vitamins, etc. Other than an Ana ab test, everything came back negative. Is my anxiety getting the best of me or is this pointing to ms.

Responses

  • 3 months ago

    RE: Scared I may have MS

    Hi kc10, while your symptoms are consistent with MS, they could be caused by a number of other conditions as well. Your pcp is on the right track running blood tests and ruling out Lyme. The best thing to do is keep a symptom log and see your pcp whenever the problems flare up again. Emphasize the extent to which your symptoms interfere with your quality of life.

    If your doc suspects a neurological problem, s/he will refer you to a neurologist, or you could ask for a referral. I hope it isn't MS, but if it is, we're here to support you in any way we can. Please do update us on what you find out. Best of luck.

    Kim
      • 3 months ago
        Kim,
        Thank you for your reply. My pcp referred me for an MRI. I also got some tests back. My complement c3 and c4 was really low. I know those are used for other autoimmune disorders but I haven't read any connection to ms. Do you know if there is one?
      • 3 months ago
        Diagnostic testing for MS does not include a blood serum complement panel. We test spinal fluid for inflammation markers called oligoclonal bands. Since the central nervous system is closed, o-bands that appear only in the spinal fluid will narrow the possibilities to stroke, brain infection, tumor, and MS. I hope our nurse/expert, Stephanie, will respond to your question further.

        Kim
      • Hello KC10xy45,

        Typically an abnormal ANA and C3/C4 point to another autoimmune condition, such as lupus. I'm glad your PCP ordered MRIs as well, as these are helpful in narrowing down the possibilities. Based on your results your PCP will refer you to either a rheumatologist or a neurologist. I would strongly encourage you to seek the advice of a specialist, since it can be very tricky to reach a diagnosis. I do not think this is just anxiety, and I hope you are able to find answers soon!