• 2 months ago

    Girdling Multiple Sclerosis Pain ("MS Hug")

    I was wondering if anyone else here with MS has experienced the so-called "MS Hug," a band of pain or pressure around the chest or midsection. It's happened to me multiple times - ranging from feeling like a literal hug to being excruciatingly painful - but almost always only a night, sometimes while I'm fully asleep. Has this happened to anyone else, or is this a unique problem?

Responses

  • 2 months ago

    RE: Girdling Multiple Sclerosis Pain ("MS Hug")

    Yes, I experience it all the time, around my rib cage. It's pretty common.

    Kim
  • 2 months ago

    RE: Girdling Multiple Sclerosis Pain ("MS Hug")

    More specifically, I meant has anyone else experienced this only while asleep?

    Sorry about that
      • I have experienced it while sleeping, but for me it comes on at all different times of the day. I'm sure it is really interfering with your sleep, how frustrating! Are you getting overheated at night, or could it be related to your mattress/positioning at night?

        A muscle relaxer at bedtime could help. Some people find that wearing tight clothing or a bandage around their torso provides counter pressure and helps also. Have you spoken to your neuro about treatment options?
  • 2 months ago

    RE: Girdling Multiple Sclerosis Pain ("MS Hug")

    "MS hugs" are one of my biggest complaints. My first one woke me up crying out of a dead sleep and sent me to the emergency room at 34 years old because I thought I was having a heart attack. My current one has been hanging around for 48 hours. It goes from painful to numb. It's much more difficult to breathe when it's numb. I cannot stand them! My physical therapist is the only one who can completely get rid of mine. It's not fun. She basically digs under my rips to massage the muscle out of the spasm. Then she has to putt my ribs back in place. This is the best trick I have found to provide a few days of relief. I hope this was helpful.
      • 2 months ago
        I too have developed the "MS hug" and almost exactly as you have described your problems with it! However, mine has progress to another symptom. My O2 levels have dropped from the 98-99 %levels to as low as 86%. My therapist and neurologist have told me that this "hug" is so tight that it is now compressing my left lung and therefore the reason for the decrease in the O2 levels. I was diagnosed with MS in 1993 and this whole new "hug" problem , only started a year ago. I am on muscle relaxants but they are not helping. Is there anything else that may help or really control it
      • The MS Hug is one of the trickiest symptoms to manage, but muscle relaxers are not the only treatment option. Here is a great overview of what causes the dreaded MS Hug, and ways to help manage it: https://www.mstrust.org.uk/a-z/ms-hug