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  • 5 days ago

    im confused

    i am 49 year old female. The first time i started realizing something was wrong was when i went walking and my whole face turned read and i hadnt been outside that long. i took sometime for the redness to go away but i just didn't realize that i was getting sick, I just thought that i was just out of shape. these are the many symptoms that have started happening after this. This started 4 years ago which lead me to the dr 4 with extreme fatigue, hair loss, extremely bad headaches, rash,and my....
  • 13 days ago

    Drug induced lupus erythematosis?

    Hi, I am a 27 year old female and I wanted to know if it was possible for me to have developed DILE. After reading up on this condition in online medical journals, it seems to be the only thing that makes sense. The only unlikelihood of this is that it typically affects women over 50. I started taking Wellbutrin XR about 3 and a half months ago and started experiencing on and off low-grade fevers, fatigue, terrible joint and muscle pain, along with swollen lymph nodes a couple times. I usually only....
  • 21 days ago

    Medical Marijuana Strain For Lupus?

    Hi, I just want to ask if someone ever tried using cannabis for pain management? I am 35 years old now and been battling lupus for almost half of my life now. I have read many articles suggesting highly concentrated cannabis oil can be effective and alternative meds for people suffering lupus. Pain and inflammation are two commonly recognized therapeutic properties of cannabis, so its ability to treat lupus effectively is not surprising. Like this review on a Northern Lights strain from http://www....
  • 20yrs and counting

    Have had sle for 20yrs already and my has it been tough but NEVER has it been this bad. I'm a new mommy of two and a new wife.:) have managed my flares on my own with clean foods exercise and tons of rest. I no longer have that luxury. I have a babies and s husband to tend to. I'm losing my strength and mind and don't know how and when it'll get better. I've never experienced all lupus symptoms till now. Wish I could fix me
  • 26 days ago

    Could I have Lupus?

    Hello, I am a 26 year old male living with a variety of ailments yet to be treated effectively. After extensive research online, I have several reasons to believe that I am one of the few male suspects with lupus. At age 8, I began losing hair in splotches along the back of my head which would soon be diagnosed as alopecia areata. Shortly after, strange reoccurring rashes began forming along my knees and random places around my arms and neck. These rashes were diagnosed as both a dermatitis and eczema....
  • 29 days ago

    Could this have to do with autoimmune?

    Reaching out to anyone with autoimmune kiddos out there. My 14 y.o. daughter has had some markers for autoimmune show up in her bloodwork twice in the past year and is just being monitored periodically by our rheumy at this point. ( I am diagnosed with lupus). She had a bizarre episode Wednesday night that took us to the ER and was admitted but they didn't find anything. She was cheering at football game Wednesday, just fine one minute, then suddenly was in intense abdominal pain, in the center....
  • 1 month ago

    ANA positive with Centromere pattern

    After my ana got positive doctor performed the below. All my other tests are normal Dsdna negative c3 c4 normal . Doctor started hcq as the treatment due to the ATT treatment is still onging.( he started off anti tb drugs for the Puo with skin test positivity) Do I have lupus or crest.
  • 1 month ago

    What You Should Ask Your Doctor About Lupus

    Have you just been diagnosed with lupus? We know that this can be a confusing and stressful time, so we’ve put together a list of 10 questions that you should ask your doctor about lupus: For those who have been living with lupus for some time now, is there anything you’d add to this list? What do you wish you would have asked your doctor at that first appointment post-diagnosis?
  • 1 month ago

    Do I have Lupus?

    Im 18 and I had blood work down in 2014 for joint pain and the doctor said it was a false positive and tested me again and never heard about it again. I switches doctors and she told me I tested positive 2 time in 2014 for my ANA test. My "Value" was 1:80 both time but my WBC was normal and my Neutrophils were always up and down. A couple time lowr then average. My new doctor made me get more blood work and this time I tested positive for ANA with a 1:160 and my WBC is 3.4 which it says....
  • 1 month ago

    Swollen Lymph Nodes

    I'm 53yo, with Lupus and just had my infusion last Friday. Sunday, I noticed a lump below my right ear, the size of a pea that was tender to the touch. Today, the lump grew the size of a small pebble, and still tender to the touch and it hurts quite a bit when I raise my head. I recently had been nursing a head cold and just been getting over it. I never had experienced a swollen lymph node before. Can you tell me what this is all about and why this happens? Should I monitor the growth? I don't....