• over 1 year ago

    Could I have Lupus?

    Hello, I am a 26 year old male living with a variety of ailments yet to be treated effectively. After extensive research online, I have several reasons to believe that I am one of the few male suspects with lupus.
    At age 8, I began losing hair in splotches along the back of my head which would soon be diagnosed as alopecia areata. Shortly after, strange reoccurring rashes began forming along my knees and random places around my arms and neck. These rashes were diagnosed as both a dermatitis and eczema by different dermatologists. These rashes and stints of alopecia have occurred randomly and consistently throughout my life.
    At age 14, I began to notice widespread rashes forming on both arms below the line of my shirt sleeves anywhere my skin was exposed to the sun. These rashes continue to occur every spring and summer and slowly retract during the fall and winter months. This was also when I realized the excessive dryness of my hair, scalp and face. I began treatment with certain prescription soaps and shampoos, all of which were unsuccessful. These symptoms still exist today. This was also the approximate time in which the lymph node behind my left ear began swelling at random times, often 3-5 times per month, followed by a feverish feeling up to an hour or two. This swelling and fever still occurs today.
    At age 18, I began experiencing crippling depression and fatigue for no apparent reason as I have always been a fairly happy person. These periods of suicidal thoughts, depression and fatigue come about unprovoked and make almost any normal activity impossible. These streaks will come to an abrupt end and I will wake up feeling 100% normal and happy. I was diagnosed bipolar type II by my psychiatrist at age 23 with minimal help from a variety of anti-depressants and anti-psychotics, which I chose to stop taking after 2 years due to fatigue, foggy mind and the risk of dependence.
    At age 22, I began experiencing unprovoked chronic low back pain. An MRI showed 2 bulged discs as well as abnormal narrowing of the spine for someone of that age. After 3 epidural injections I was advised to undergo surgery by my primary physician. I was referred to a spine surgeon at OU Medical Center who upon consultation suggested surgery would not relieve much pain as his diagnosis leaned toward osteoarthritis.
    At age 25, I lost over 60 lbs in a matter of two months after no change in diet or physical activity. I began experiencing intense reoccurring joint pain in my knees, hips, and hands, especially in the morning and late at night, along with consistent nerve pain stemming from my left buttox down into my quad. Various anti inflammatory drugs were prescribed to subdue the pain, although I soon developed stomach ulcers and rectal bleeding.
    Now, at age 26, I continue to deal with all symptoms listed above on either a consistent or reoccurring basis, and new symptoms have emerged. In the last three months, I have started experiencing constant constipation, hemmeroids, rectal bleeding and abdominal pain. The most recent symptom, which began a few months ago, is the "butterfly" rash on my face notoriously associated with lupus. It produces redness and elevation of the skin with a burning sensation rather than an itching sensation, lasting several days or up to a week.

    Lupus seems to coincide the best with my research, but I would like outside opinions.

Responses

  • over 1 year ago

    RE: Could I have Lupus?

    Hi Thank you so much for posting your story here. I hope that someone with personal experience is able to chime in soon and offer some words of encouragement and a little bit about what led them to a diagnosis.

    Have you spoken with your current doctor about your thoughts that the symptoms you are experiencing may be lupus? A medical professional will best able to determine if your symptoms are consistent with lupus and run the necessary tests to properly diagnose you. Here is some information about how lupus is diagnosed, tests your doctor may request, and a list of questions that you may want to discuss with your doctor: http://wb.md/2cEVKTN

    I hope that you will check back in soon and let us know how you are doing, and if you have gotten closer to a diagnosis!
  • RE: Could I have Lupus?

    Hello. My response may not be what you are looking for, but my question is: why are you asking a group of laypeople for an "outside opinion"? For your age, it looks like you have had quite a few issues. MY opinion would be to tell you to go see a good professional to help you diagnose your symptoms! It may be something very serious! Good luck!!
  • 4 hours ago

    RE: Could I have Lupus?

    you may never know if its lupus. it can come and go in your blood tests.
    my sister and I both have been diagnosed. She was chronically sick as a child and rec'd many drugs. I was a heavy drug user as a teen. My haematologist .told us Lupus our lupus is drug induced, as no blood disorders or auto immune is in either side of our family, and we live healthy, non, drinking, non smoking lives.
    Dont be label conscious. Listen to your body. Read and learn its language(s).
    Eat alternating paleo and/or keto, avoid dairy, trans fats, drink distilled or RO water with minerals added back in, dont vaccinate, dont smoke, reduce or dont drink alcohol, do a liver cleanse, fast for a day regularly
    and keep your body active.
    Keep a chart on your symptoms and triggers. Eliminate foods etc one at a time and record results.
    Get a before and after live blood cell test, hair analysis and blood Ph.
    Doctors cant piece together many modern maladies, as they are complex, and the metrics they used to use to determine population health and projected diseases are skewed by mass migration and mixing gene pools, myriads of vaccines and other drugs, pesticides, hormone transfers thru water supply etc, and airborne toxins.
    I was diagnosed by accident in my early 20's, confirming many symptoms Id had in my youth. I took almost two years off work to recover, and formulate an informed response. I began rebuilding my lifestyle, one change at a time as I learned about how my body, and mind work, or dont.
    Im nearly symptom free for 40 years, other than very mild, almost imperceptible attacks following long sleepless periods due to over work, or stress.
    Just had a series of several blood tests, x rays and skin biopsy, for a suspected
    skin disorder, that turned out to be nothing. All clear test results.
    Become your own expert.
    And dont worry. If after you have done all you possibly can to mitigate Lupus, you are still sick, well then, you may just have to live with it.
    But Id bet having done the above, you will have far less troubles.