• 8 months ago

    Lupus diagnosis

    Hi
    I live in Kentucky and I need information about a doctor who can effectively diagnose lupus or tell me what is going on with me.
    In a nutshell, I have tried two primary physicians who were not able to give me a correct explanation about symptoms I am experiencing. the only answer was they don't know.
    So far I have experienced UTI like symptoms but all the test came up negative. I had swallowed lymph nodes in my groin that comes and goes. Since 8 months i am experiencing allergies to some food ,I can no longer drink coffee, no gluten or any type or cereal otherwise will be inching within a couple of minutes. I also had some episodes of total fatigue in a way that I cannot even move my body, I had to rest for a while before being able to do anything. But what really scares me is the white particle or worm-like strings in my urine(maybe white cells). doctors still cannot figure this out. all urine test came up negative. In addition, I am having poor blood circulation symptoms. I cannot even kneel down and pray without feeling cramp and tingling like when you sit on your feet for a while. it happens also when I am in the bed, I cannot fold my arms without feeling the same sensation. I have to sleep with my arm and leg flat. all this started 8 months ago when I experienced a huge series of symptoms: pain in the back, itching and tingling, metal taste or bidder tongue, fatigue and so on, pain in my chest like something stinging my heart. I don't know what to do and really don't know who else to talk to.
    I remember that I use to have the lymph node in my groin since I was a kid, but I thought that was important. I also had some episodes of very light fever. I thought that was normal since it did not last more than one day.
    if you know anyone who can help, please let me know. I can feel that my body is going through a lot of changes but no doctor is able to help. I see that many people with lupus experience the same symptom, that is why I really want to check with another doctor.
    P.S : all the test I took are negative: urine test, blood test, a scanner of the lower body, ultrasound and CT scan for kidney and bladder, camera in the bladder, urine culture for bacteria, test for prostate and many other that I don't remember.

Responses

  • 8 months ago

    RE: Lupus diagnosis

    I'm so sorry that you are going through this! You might start with seeing a rheumatologist. Unfortunately, we can't talk about specific doctors on here. But WebMD does have a doctor finder that could help you find someone in your area who could help you. http://doctor.webmd.com/?sponsor=core

    Also, here's some info from the Lupus Foundation about what doctors treat lupus http://www.lupus.org/answers/entry/what-kinds-of-doctors-treat-lupus

    I hope you are able to find answers soon!
  • 7 months ago

    RE: Lupus diagnosis

    Hi, I'm from Connecticut and I have lupus, ranous and Fibromylgia too. You will experience a lot of symptoms. Pain, tiredness, tingle fingers and toes. Find your self a good Rumatology, it will do a lot of blood test including the NA witch it will show all the cells and what is high or low in your body. The immune system sometimes do drastic changes and it needs to be check. Lupus and fibromylgia has the same symptoms. Make sure the rumatologist do more test to find out. Good luck