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  • 2 days ago

    Long Term Cellcept Use

    I have been taking large doses of Cellcept for almost 10 years now - 3,000 mg/day. Has anyone else on large doses experienced any adverse side effects? Just curious because of the long term toxicity issues with doses exceeding 2,000 mg/day.
  • 2 days ago

    Lupus or scarcoidosis

    My blood test show. ANA positive (speckled pattern) ESR elevated and my ACE elevated. Dr is not sure if it's lupus or scarcoidosis. Anyone have any thoughts on this? I was also reading a book that Sulfa can cause a flare in Lupus patients. In Dec 2016 I had a UTI and my primary physician gave me sulfamethoxazole..... a certain antibiotic. This was what it said on the Lupus site "Bactrim and Septra are often prescribed for bacterial infections, especially urinary tract infections. They are....
  • 28 days ago

    How do I know if this is a lupus rash? Is there somewhere to post a picture?

    I was hoping to find somewhere to post a picture of a rash I have in my face
  • 1 month ago

    Drug-induced lupus

    Has anyone ever been diagnosed with DIL (drug-induced lupus)? A few years ago, I began having lupus like symptoms that caused a lot of dysfunction in my life for over a year, and I had a positive ANA test. I was referred to a rhumetoid specialist but he only thought it was something other than lupus and yet never gave me any other diagnosis after many many many tests, referrals, etc. I have had a healthy year now since then but feel at times as if I could be experiencing those symptoms again. I was....
  • 1 month ago

    i wont to know about exercise to do

    Tell me more a good exercises to help for people with lupus
  • 1 month ago

    Lupus - a trigger - before and after diagnosis?

    For as long as I can remember, I have been plagued with sinus infections. Starting at age 17 I began having Migraines with Auras which continue. I had a complete hysterectomy at 30 and developed Bells Palsy at 38. I was diagnosed with Lupus at the age of 43. I began taking low levels of Plaquenil and remarkably it reduced the symptoms & I returned to work after a 2-year layoff. I modified my diet, stress levels and workload and except for flu and sinus infections (which usually lasted 10x longer....
  • 1 month ago

    My mother and Lupus?

    Hello everyone. At my apartment, I like to keep the temperatures cool and I enjoy cozying up with my PJS and a blanket with friends and family. However, whenever my mother comes over, even though I keep my AC on 72, my mother's fingertips turn almost completely blue. I thought it was oxygen deprivation but it seems to be only when she's cold. My friend told me that it could be Lupus. Is that something that typically happens? It's very strange and I'm concerned. Please help. I don't....
  • 2 months ago


    My mother had lupus and so did I. It did end my working life early because it forced me out on permanent disability, gave me a hard time for 10 years or so; then went into remission. However, along the way, I also picked up epilepsy and 2 diseases: Sjogrens and Raynauds. For the rest of my life I will be on seizure meds. Within the last year, S & R (I call them my evil twins) have come back and likely will haunt me for the rest of my life. Sjogrens makes every orifice dry, as in dry mouth, dry....
  • 2 months ago

    Lupus diagnosis

    Hi I live in Kentucky and I need information about a doctor who can effectively diagnose lupus or tell me what is going on with me. In a nutshell, I have tried two primary physicians who were not able to give me a correct explanation about symptoms I am experiencing. the only answer was they don't know. So far I have experienced UTI like symptoms but all the test came up negative. I had swallowed lymph nodes in my groin that comes and goes. Since 8 months i am experiencing allergies to some food....
  • 2 months ago

    lupus hedache

    Doctor doesn't believe me when I told them that I have lupus hedache. Hi, I was diagnose with lupus after my heart attack in 2012. I was very active at home, with my kids and I think too active in my job. Ocasionally I had tension hedache. After my heart attack, I had a lot of trouble with my right leg, couldn't walk properly. I can fill the right side of my face and my lip was sideways. It took me two years of therapy and now I walk, exercise. work and do everything in my house. Doctor rule....