• 10 days ago

    WARNING re: Harmony Cell-Free DNA Test!

    It was this exact week last year that I went in for a routine check up for my 12 week prenatal appointment. My OB suggested that I take the "Harmony: Cell-Free DNA test" to rule out any genetic disorder, simply because of my age of 36. Even though hubby and I do not have any family history of genetic disorders, we decided to partake for the innocent fact it would tell us the gender at 12 weeks, as well as rule out genetic conditions. The test is 99% accurate at detecting the 3 Major genetic disorders; trisomy 21 (Down's syndrome), trisomy 18, and trisomy 13. The test is done by a simple blood draw at the lab. I was tested.

    My OB called us on a Friday late afternoon to tell us the results. Having all girls, we were anxious to know the gender...I absolutely knew at the minute of conception it was a boy! We were soooo excited for this phone call!!! However, his voice was somber, and very professional. He said devastatingly, "Your baby tested positive for Trisomy 13- which is 'considered incompatible with life.' This test is 99% accurate, I am so very very sorry." Though a whirlwind of thoughts, total numbness, and shock I still did not comprehend the severity of what he was telling me. I asked, "so, the baby will not survive?" My OB further explained that not only would the baby not survive more than a few days past birth- but it was so physically and emotionally morbid that even as a Christian doctor he (and the medical board) suggest terminating my pregnancy. He counseled us to think about it over the weekend, and call his office Monday morning.

    (Side note: on Christmas Day in 2004, I spontaneously went into premature labor with 24.5 week old twins. They were unable to stop my labor, and my twins passed away 3 hours after birth. So understandably, with this new pregnancy diagnosis of Trisomy 13, I was absolutely devastated and heartbroken with the idea of burying a 3rd child.)

    The entire weekend I was numb with this news and test result. My motherly instinct, which I have trusted, was completely screaming the opposite, "This baby is absolutely perfectly healthy!!!" How could I be so off? Torn, I chose to have a second opinion to the Harmony test, and consulted the Maternal Fetal Medicine specialist. I had an amniocentesis and very invasive ultrasound test performed. Results would be available in 10-14 days. We waited. Uneasily.

    12 long days later, the Genetic Counselor called us with a quiver in her voice, "Though the Harmony test is 99.2% accurate, it appears you received a 'false-positive' result. Your baby BOY is absolutely perfectly healthy."

    As a mother we are given an incredible gift of mother's intuition; we know when something is so beautifully right, or when something is undoubtedly wrong. Medicine is practiced by man, and errors can be made. The "Harmony, Cell-Free DNA Test" is 99% accurate, yet we received a false-positive. Our baby was born in April 2017- a healthy, beautiful 9.11 oz baby boy. I write to you who may be expecting mothers, or know of someone taking the Harmony test. Trust your instinct. Ask for a second or even third opinion. Medicine is not 100% accurate. If I had strictly taken the test results, in combination with the doctors suggestion of terminating the pregnancy...I would not have my beautiful, HEALTHY, baby boy,l.

    God is the almighty; seek him. He has given us a gift, intuition. Trust your gift as a mother, and as your baby's protector.

    Baby dust, and love to you all!
    Momma & Baby Boy

Responses

  • 9 days ago

    RE: WARNING re: Harmony Cell-Free DNA Test!

    So beautiful what God can do! He heals all! This is an amazing story! Thank you for sharing. Being pregnant is terrifying. Always worried about what's going on in there. But we always remember He is in control. So happy for you and congratulations on your baby boy!!
  • 5 days ago

    RE: WARNING re: Harmony Cell-Free DNA Test!

    Blessed God is good all the time !!!!!
  • 4 days ago

    RE: WARNING re: Harmony Cell-Free DNA Test!

    So sweet to share! God bless
  • 4 days ago

    RE: WARNING re: Harmony Cell-Free DNA Test!

    Thanks a lot for sharing. Very inspiring. May God continue to bless your family.
  • 4 days ago

    RE: WARNING re: Harmony Cell-Free DNA Test!

    I'm definitely NOT trying to imply that God granted me a special blessing over any other worthy mother- I have gotten some really bad critics (moms) on other sites claiming that I'm insensitive to believe I received a miracle over anyone else. I just wanted to share MY experience of a test that "guarantees 99% accuracy" which was wrong in my case. Others have terminated based on my same results, and I feel I should share the inaccuracy to save other healthy babies lives. In my experience, (based on sacred and personal revelation and mothers intuition I undoubtedly received) I cannot deny I received a miracle. Thank you for your support- I'm just trying to educate, bring awareness to the test, and in my experience- thank God.
      • 3 days ago
        : I do think you should listen to what those other ladies have said about phrasing and take it to heart. Look at it from the perspective of people who have lost their babies. God just doesn't care about them? They weren't worthy of blessings? Please just be careful about presentation. I hadn't said anything here but this post has bothered me for that very fact. I'm glad someone said something.
      • 2 days ago
        I definitely understand their point of view. I have been THAT mother begging and pleading for a miracle I did not get. As a result- I had two babies who only lived for 3 hours and pass in my arms. Taking God out of my comments- I hope to just concentrate and focus on awareness of the test, and to always seek another opinion. Thank you for you insight.
  • 3 days ago

    RE: WARNING re: Harmony Cell-Free DNA Test!

    We serve a mighty God! I loved reading this. They told me and my future husband (at this point we were in high school) that we would not be able to conceive and that if we did we would have to have help. I didn't listen to it. Fast forward to the time when we were ready to conceive and it wasn't happening. We prayed and prayed I was angry and bitter. I went to a service and my life was forever changed. I was given many prophecies about what's to come in my life. This was 3 years ago and I am so blessed to say that baby number 2 is in the making. 6 weeks strong! We to are so confident that it is a boy. Congratulations!